Just sad

I feel a need for connection but can't really connect. Even in this forum. I want to feel pleasure, but with my meds I feel nothing. The win is that I don't have extreme stress and self harm anymore, but the sacrifice is losing love to my hobby. So it feels empty. I started functioning better at least from someone's perspective- it takes me less time to process information and respond- very important for my daughter. There is s big improvement with my repetitive behaviours.  Unfortunately there is not much improvement in my social skills, maybe only the thing that I can "take a bit more". So I can spend some more time with my loved ones without sensation of my brain shaking when others chat.

My daughters teacher keep encouraging me to make contact with other parents of other kids. But I have the stress like always: and what will we talk about? How should I approach them? I feel pressured to make friends. I red that social awkwardness of a parent may also influence the child's development. As for now my daughter is doing better and better. Im just tired. I feel not fully mature although I often hear, that im very logical. 

My therapist says I should be assessed for autism. I asked him if he has maybe any other suspected diagnosis,  but he said there is nothing else that would come to his mind. I'm scared of all this and I can't manage it. I still didn't find a clinic,  nobody responds to my calls and no callback. It's all too much. It feels like a pile of heavy books put on my head and I have to carry them. I'm also stressed because even if I find a diagnostic clinic, I might be refused because of not having informant. I do have some evidence of me having problems since my early childhood,  but there is noone to confirm it for me. I'm tempted to go private- especially because I want to get a citizenship of the country I'm living in, so not having the dx in the papers would be better option. I have savings,  I can pay it. But then there is a doubt- would they really properly diagnose me as they should or would I just get the diagnosis I pay for. I was misdiagnosed previously in my life and mistreated and I wouldn't like to go through that again. 

On other hand, maybe the evidence that I have and my memories would be enough for a private assessor. I have my school reports and what they show is quite a spikey profile, they state i was whiny (in summer camp) also well behaved and compliant. The biggest problem with them and all other papers that I have is that they are all in my first language. Not in German. So either I would have to pay for translations or the assessors would be fine with just seeing the originals and having it translated by Google. 

I'm relatively successful- I got married although I heard my whole childhood and youth,  that I wouldn't be good in this role. I graduated and have a job. Low wage job much below my qualifications but it's much better than not having any job. Without meds every single day is a huge stress for me, I cried at work in every company I worked for, it costs me a lot to go through the day, not to mask and appear normal. I'm often not taken seriously. 

I kinda feel like I should cry but there are no tears coming because I feel not enough to cry. I'm sorry for this quite long and probably pointless post. 

Thank you all for being here and for that I can be here part of this community. 

Parents
  • I don’t have anything to say that will be of practical help with your issues, but I’m glad you were able to say how you are. 

    I don’t know how the system for autism diagnosis works in your country, but I would hope that whichever route you would take, the diagnosis would be based on the US or European criteria, both of which are used in the UK. 

    there is a doubt- would they really properly diagnose me as they should or would I just get the diagnosis I pay for.

    Can you research ‘adult autism assessment’ to see what is available in your country and how the system works? Would your therapist have information on your options? Perhaps finding out would give you something tangible to focus on rather than uncertainty over the autism process. After that you could think about whether or not you want to be assessed … one thing at a time.

    Low wage job much below my qualifications

    That is a common thing for people in this community. Some people are better able to cope in a job below their qualifications, while some people want a job that fits their qualifications but there aren’t openings.

    I heard on the news that six planets are going to appear in the same part of the sky, at the same time on Sunday. Mercury, Venus, Saturn and Jupiter should be visible to the naked eye, but Uranus and Neptune will likely require binoculars or a telescope. I’m keeping my fingers crossed for a cloudless sky, but the odds are against it.

  • Yes, I also red about the planets alignment! I hope I will see them.

    I heard many times, that there is something wrong with me, how is it possible that I (with my skills, knowledge and qualifications) can't find anything better. It's like that. In this current company my manager first wanted to make me his assistant because as he said I'm intelligent,  learning fast and doing good. But then he changed his mind. Because of my poor social skills and highly monotropic profile. I can't work on a higher position or full time. I wouldn't survive it. 

    The main thing I need the diagnosis for is being able to join local support group and hopefully some therapies. Ad it turns out, I struggle to understand emotions and intentions not only of strangers, but also of my husband and daughter.  Do it affects my parenting. I need someone to tell me that my daughter is able to do this or that, but she doesn't want to. Just an example. 

    There is one lady family assistant, she comes once a week and helps me and my daughter. I'm happy so far.

  • I heard many times, that there is something wrong with me, how is it possible that I (with my skills, knowledge and qualifications) can't find anything better

    That is a typical question asked by non-autistic people. They don’t understand and some don’t try to understand us. Such negative and unjustified comments can harm our mental health. That sort of thing had a profound impact on me and it was part of the reason why I wanted a diagnosis. I worried about receiving a negative diagnosis but decided I was feeling so bad anyway that it could have only a temporary effect in my mental health. In the end it absolved my guilt.

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  • I heard many times, that there is something wrong with me, how is it possible that I (with my skills, knowledge and qualifications) can't find anything better

    That is a typical question asked by non-autistic people. They don’t understand and some don’t try to understand us. Such negative and unjustified comments can harm our mental health. That sort of thing had a profound impact on me and it was part of the reason why I wanted a diagnosis. I worried about receiving a negative diagnosis but decided I was feeling so bad anyway that it could have only a temporary effect in my mental health. In the end it absolved my guilt.

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