Pain Clinic, waste of time

Sorry got signed out.

But they dont' recomend injections at all now and dont' do them, they prescribe lifestyle changes instead along with the pain killers I can't take. I do all the things they suggest like taking exercise daily and getting out and about and not sitting around doing nothing.

It's all well and good them deciding not to do certain treatments anymore but I think they should have something to offer in it's place, they've always encouraged lifestyle changes, last time they said I could teach them things rather than the other way around. 

 I feel left high and dry with nowhere to go with the levels of pain I endure on a daily basis, let alone when I have a bad day and when I go to stand, my shin bones feel like they're going to pop my kneecaps off. They don't do anything for fybromyalgia, she suggested I go to a comunity group that helps with lifestyle choices for fybro, nothing for osteo arthritis, just grin and bear it.

If they have so little to offer is it any wonder that people try so many, often unregulated alternative treatments? Don't they understand that when you're in pain every day, thats uncontrolled, that people get desperate and that leaves them open to charletans and snake oil salesmen?

Sorry I'm ranting again, but I'm fed up, I've spent years dealing with pain, with little or no help, trying everything I can to stay out of a wheelchair, now when I'm at the end of my resourses, there's nothing, no help, not even kindness.

Sounds like the nurse at the pain clinic was a bit of a pain in the *rse. 
I hate it when medical care (and highlight on the word care), providers are rude and passive aggressive. It's partly why I will do everything to avoid seeing medical people now myself, as I've had so many experiences of them being rude or just plain horrible, even when I've had a sick baby. I'm so sorry that 7 months wait was worth nothing -I mean if the consultant is off, why not just be given the option to wait a bit longer, rather than being discharged and back to square one. 

They should surely have to offer you some pain relief that you can take, I know you've said before you have a lot you can't.  I would actually make a complaint about the rudeness, they may be busy and understaffed, but how you treat people in that line of work can have a profound effect on their lives. 

As you said, you can see why people start trying alternative medicine, when no one else will listen!

I use a lot of alternative treatments, massage, reflexology which is brilliant for the fybro, osteopathy, herbal rememdies, the made thing is that some of the herbs and other treatments doctors know about and rate and will tell you they know of them but can't recommend or prescribe them, even though they maybe the best option for the patient.

In many ways pain medication is unchanged from years ago, it seem a choice of aspirin, paracetamol NSIADs like ibuprofen and opioids like cocodamol all the way up to fentanyl. The only one of those I can take is paracetamol and the only way I can have enough to really control the pain is via a drip, which for obvious reasons isn't eally an option outside of hospital. There's a very tight lipped, fingers in ears la la la approach to things like CBD, let alone medicinal cannabis, they're DRUGS and something bad might happen, although they're quite happy to dish out opiates that they know are addictive. The minor injuries unit know about Turmeric/ curcumin and reckon its brilliant stuff, but again it cannot be prescribed or recommended, it's a ridiculous situation only made worse by our health trust being totally incompetant and useless and the lack of political will to sort it out.

I use a lot of alternative treatments, massage, reflexology which is brilliant for the fybro, osteopathy, herbal rememdies, the made thing is that some of the herbs and other treatments doctors know about and rate and will tell you they know of them but can't recommend or prescribe them, even though they maybe the best option for the patient.

In many ways pain medication is unchanged from years ago, it seem a choice of aspirin, paracetamol NSIADs like ibuprofen and opioids like cocodamol all the way up to fentanyl. The only one of those I can take is paracetamol and the only way I can have enough to really control the pain is via a drip, which for obvious reasons isn't eally an option outside of hospital. There's a very tight lipped, fingers in ears la la la approach to things like CBD, let alone medicinal cannabis, they're DRUGS and something bad might happen, although they're quite happy to dish out opiates that they know are addictive. The minor injuries unit know about Turmeric/ curcumin and reckon its brilliant stuff, but again it cannot be prescribed or recommended, it's a ridiculous situation only made worse by our health trust being totally incompetant and useless and the lack of political will to sort it out.

Acupuncture. There are two different types, one is traditional and was practised for centuries but was banned during the Cultural Revolution in the 1960's, many practitiioners came to Britain and started teaching, so there should be plenty of traditional practitioners around.

The second type of acupuncture that was allowed after the Cultural Revolution treats the symptoms of an illness rather than trying to balance the whole body, it is this second type that the NHS sometimes provide. I had this before and it didn't work for me, except when I had a treatment after a poor nights sleep where I ended up with a frozen muscle and the relief was almost instant.

I do want to try traditional accupuncture, I'm told it's better for long term conditions and ones that produce a variety of symptoms and problems like fybromyalgia. For example, you hurt, so you tend to have poor posture and end up with your shoulders around your ears, then you get headaches and digestive problems. In Western medicine and non traditonal accupuncture all of these symptoms will be treated as seperate issues and you may well end up on several different drugs or treatments, none of which are really addressing the problem, in a holistic treatment it will be recognised that pain causes the body to tense and the digestion to malfunction and headaches to occur, if the main underlying problem is treated then the others will sort themselves out.

I had heard about how good turmeric is. As you say, what makes it difficult is how to find out what is considered actually good and what is just a craze. At one point they were going to legalise medicinal canabis as they recognised it's effects on pain management, but that seems to have gone away again as 'too tricky' politically, which must be very frustrating. 

I guess aswell some things will work better on some people than others, so you have to try some things like reflexology or the one where they stick those needles in you (I can't for the life of me remember what it's called now), and just see if you get any benefit from it, seeing as nothing else is available, and all private and costly I imagine!