Pain Clinic, waste of time

I had a call with the pain clinic earlier, I'd been waiting nearly 7 months for an appointment, I was supposed to speak to the consultant, but he wasn't in today, so I had a nurse instead, she was one of the most unsympathetic people I think I've ever spoken too and that takes some doing. Seeing that I'd been discharged before for something else, she asked 'what I expected from them this time?' That felt incredibly insulting, like I'm on at them all the time, I was refered this time for a different problem than before, I asked if it was possible that they had some different injections to the ones I normal have or if I could have them more often with a consultants recomendation

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  • Sorry got signed out.

    But they dont' recomend injections at all now and dont' do them, they prescribe lifestyle changes instead along with the pain killers I can't take. I do all the things they suggest like taking exercise daily and getting out and about and not sitting around doing nothing.

    It's all well and good them deciding not to do certain treatments anymore but I think they should have something to offer in it's place, they've always encouraged lifestyle changes, last time they said I could teach them things rather than the other way around. 

     I feel left high and dry with nowhere to go with the levels of pain I endure on a daily basis, let alone when I have a bad day and when I go to stand, my shin bones feel like they're going to pop my kneecaps off. They don't do anything for fybromyalgia, she suggested I go to a comunity group that helps with lifestyle choices for fybro, nothing for osteo arthritis, just grin and bear it.

    If they have so little to offer is it any wonder that people try so many, often unregulated alternative treatments? Don't they understand that when you're in pain every day, thats uncontrolled, that people get desperate and that leaves them open to charletans and snake oil salesmen?

    Sorry I'm ranting again, but I'm fed up, I've spent years dealing with pain, with little or no help, trying everything I can to stay out of a wheelchair, now when I'm at the end of my resourses, there's nothing, no help, not even kindness.

  • Sounds like the nurse at the pain clinic was a bit of a pain in the *rse. 
    I hate it when medical care (and highlight on the word care), providers are rude and passive aggressive. It's partly why I will do everything to avoid seeing medical people now myself, as I've had so many experiences of them being rude or just plain horrible, even when I've had a sick baby. I'm so sorry that 7 months wait was worth nothing -I mean if the consultant is off, why not just be given the option to wait a bit longer, rather than being discharged and back to square one. 

    They should surely have to offer you some pain relief that you can take, I know you've said before you have a lot you can't.  I would actually make a complaint about the rudeness, they may be busy and understaffed, but how you treat people in that line of work can have a profound effect on their lives. 

    As you said, you can see why people start trying alternative medicine, when no one else will listen!

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  • Sounds like the nurse at the pain clinic was a bit of a pain in the *rse. 
    I hate it when medical care (and highlight on the word care), providers are rude and passive aggressive. It's partly why I will do everything to avoid seeing medical people now myself, as I've had so many experiences of them being rude or just plain horrible, even when I've had a sick baby. I'm so sorry that 7 months wait was worth nothing -I mean if the consultant is off, why not just be given the option to wait a bit longer, rather than being discharged and back to square one. 

    They should surely have to offer you some pain relief that you can take, I know you've said before you have a lot you can't.  I would actually make a complaint about the rudeness, they may be busy and understaffed, but how you treat people in that line of work can have a profound effect on their lives. 

    As you said, you can see why people start trying alternative medicine, when no one else will listen!

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