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Connections between mental and physical health

NorthEastRecluse

I am going through a very bad patch. Even though doctors say I don't have DVT, due to stubborn blood clots I am on the same dose of blood thinners as someone who has it. I have heard blood thinners can have a degrading effect on mental health, which certainly feels true for me; I feel like I'm made out of glass.

Not helping is that I somehow pulled a back muscle on Tuesday night, and even trying to move is still painful for me.

I feel like this is all being amplified by my autism, which in part manifests as me feeling everything going on in my body and having it screaming at top volume. To my mind, I feel like all these health problems I'm having are gonna cause me to be in the ground far sooner than I should be, and that's only making me feel even worse.

I don't know what to do, what coping strategies would be effective. I feel like I've tried everything.

If other people have chronic illness, how do they cope?

Parents

  • As well as ASD I'm also diagnosed with ADHD and TRD. I try to keep active but trying to push myself to do something a little more regimented and intense is so hard.

     Keep being told that physical activity is more effective than antidepressants to enhance my feelings of wellbeing but implementing any sort of program just fills me with dread.

     Also have chronic pain from issues with my joints, I thing years of being overly flexible have caught up with me .

    Take care.

  • in reply to Hergé

    I can certainly relate to being overly flexible. I was contorting myself into all manner of odd positions when I was growing up, and now it's all caught up with me.

    And yeah, I really struggle to implement any sort of exercise regimen because my body honestly can't tell the difference between "exercise agony" and just plain agony.

  • in reply to NorthEastRecluse
    NorthEastRecluse said:
    I really struggle to implement any sort of exercise regimen because my body honestly can't tell the difference between "exercise agony" and just plain agony

    Finding an experienced personal trainer with knowledge of hypermobility should be the most direct way to develop a program of exercise that does not overstrain your joints plus they can recommend what you may need for joint supports (those elastic bands that go round your knees and elbows) to keep things in place.

    Making a sensible diet to make sure you are getting all the nutrients you need plus the right balance of protein, carbs, fats etc to keep your joints healthy will be useful.

    NorthEastRecluse said:
    I have heard blood thinners can have a degrading effect on mental health

    There is a connection between some medication and mood / personality changes - there is some discussion of this here:

    https://biologyinsights.com/can-blood-thinners-cause-personality-changes/

    I note the entry: Any significant, unexplained personality shifts should also be discussed with a healthcare professional without delay. 

    Have you spoken to your GP about these side effects? Since you need the medication for the clots then it may be that they need to change you to an alternative drug to resolve it.

    NorthEastRecluse said:
    If other people have chronic illness, how do they cope?

    I've worked with a few people who have chronic pain issues and they have all tried different techniques but with varying degrees of success and most learned to live with the pain although it was never nice.

    Since this is a symptom that arrived with the blood thinners then it seems logical that it is linked so speak to the specialists and get them to make changes and have it added to your medical record that you had a bad reaction to the drug - just so they don't repeat the issue in future.

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  • in reply to NorthEastRecluse
    NorthEastRecluse said:
    I really struggle to implement any sort of exercise regimen because my body honestly can't tell the difference between "exercise agony" and just plain agony

    Finding an experienced personal trainer with knowledge of hypermobility should be the most direct way to develop a program of exercise that does not overstrain your joints plus they can recommend what you may need for joint supports (those elastic bands that go round your knees and elbows) to keep things in place.

    Making a sensible diet to make sure you are getting all the nutrients you need plus the right balance of protein, carbs, fats etc to keep your joints healthy will be useful.

    NorthEastRecluse said:
    I have heard blood thinners can have a degrading effect on mental health

    There is a connection between some medication and mood / personality changes - there is some discussion of this here:

    https://biologyinsights.com/can-blood-thinners-cause-personality-changes/

    I note the entry: Any significant, unexplained personality shifts should also be discussed with a healthcare professional without delay. 

    Have you spoken to your GP about these side effects? Since you need the medication for the clots then it may be that they need to change you to an alternative drug to resolve it.

    NorthEastRecluse said:
    If other people have chronic illness, how do they cope?

    I've worked with a few people who have chronic pain issues and they have all tried different techniques but with varying degrees of success and most learned to live with the pain although it was never nice.

    Since this is a symptom that arrived with the blood thinners then it seems logical that it is linked so speak to the specialists and get them to make changes and have it added to your medical record that you had a bad reaction to the drug - just so they don't repeat the issue in future.

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