Struggling with being misunderstood / autistic burnout

Hello, I'm 31 and was diagnosed with autism at the start of this year. I have had autistic burnout for over a year now, and still really struggling with feeling alone and misunderstood. My mum was the only family member I was somewhat close to but I'm feeling so disconnected to her and everyone. Every time I see my Mum I have a shut down and they seem to be getting worse and worse. My mum is kind and I know that she wants to help me, but she isn't consistent, and she just can't seem to get a real understanding of what my experience of life is. There was also a situation last year where I asked for her help in a social situation and she ignored it and then became defensive. I unmask the most with my Mum, so I think I'm always looking for her to be my 'safe' person. But she is so so different to me and I feel nothing I say is heard.

I have tried writing a letter to explain to my Mum what I'm struggling with and how I feel, but her response was quite generic and a bit dismissive. It feels unbearable to consistently be trying to be understood and never getting anywhere. I usually feel even worse after speaking - probably why my brain is shutting down in front of her. I don't know what to do with this relationship. I have been told by a therapist to maybe take a step back from her, but that doesn't feel possible either. I don't have any other family member or friend to go to instead. I also get this really terrible feeling that something awful is going to happen to her if I don't maintain the relationship, but I fear the relationship can only be on her terms.

I wonder what other autistics do when they don't have a 'safe' or close person? It feels like the end of the world as is really affecting my mental health.

Parents
    1. Hi,I am sorry you are experiencing this - I can relate- I have struggled with burnout on and off for years and I am getting better at seeing the signs before utter disaster strikes but I still seem incapable of preventing even deeper burnout as people don’t understand when I say that I am not coping and need to slow down or take a break- even people that I know care about me and are generally understanding- it can be so hard when others are minimising your experiences because they just don’t understand - I mask relatively well and I have years of experience of hiding that I am an utter wreck. I also think people often compare your experiences to something they have experienced and then conclude that it is similar even if it might not be and/ or the impact it has on me seems much greater. I often end up thinking I’m just stupid, lazy etc and should be able to cope too. I am lucky that my mum understands but it does put a huge strain on her as I lean heavily on her for support. It helps to interact with other neurodiverse individuals - they are much more likely to understand and communication is easier and it’s easier to be yourself. I realised after being diagnosed that most of my friends are neurodiverse- I feel very lucky that I met at least a few likeminded people at university- it is much harder to make friends now. This forum has helped too. I actually also now occasionally talk to a therapist who is autistic himself which is good. It’s hard when you feel alone but there are people out there that understand and that you can connect to. I hope you find some soon!!
Reply
    1. Hi,I am sorry you are experiencing this - I can relate- I have struggled with burnout on and off for years and I am getting better at seeing the signs before utter disaster strikes but I still seem incapable of preventing even deeper burnout as people don’t understand when I say that I am not coping and need to slow down or take a break- even people that I know care about me and are generally understanding- it can be so hard when others are minimising your experiences because they just don’t understand - I mask relatively well and I have years of experience of hiding that I am an utter wreck. I also think people often compare your experiences to something they have experienced and then conclude that it is similar even if it might not be and/ or the impact it has on me seems much greater. I often end up thinking I’m just stupid, lazy etc and should be able to cope too. I am lucky that my mum understands but it does put a huge strain on her as I lean heavily on her for support. It helps to interact with other neurodiverse individuals - they are much more likely to understand and communication is easier and it’s easier to be yourself. I realised after being diagnosed that most of my friends are neurodiverse- I feel very lucky that I met at least a few likeminded people at university- it is much harder to make friends now. This forum has helped too. I actually also now occasionally talk to a therapist who is autistic himself which is good. It’s hard when you feel alone but there are people out there that understand and that you can connect to. I hope you find some soon!!
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