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New here....has anyone else experienced this?

Oodlepop

Hello Everyone,

I've never posted on here before and my husband found the online community for me as I'm struggling at the moment.

I was diagnosed with ASD in December 2024, I'm 41 now.

I've struggled with anxiety all my life, been on and off meds since I was 16. I've been to GP and asked to be referred to the local mental health team as I've tried all medication and have a few diagnosis PTSD and OCD (both managed).

In the last 2 months I've been experiencing very intense periods of irritability and panic. I struggle with explaining emotions but the best way I can describe is that I can feel the emotions in my body and it's like a coiled spring and all the energy from the spring is coursing through my body. My thoughts race and I feel completely out of control and just stare into space. I feel like there is no hope and I'm completely lost of how to move forward.


I've been reflecting on this and realised this seems to happen at least 2 times a year around the same times of year since I was 15 during these times I've previously left jobs either because of feeling so out of myself or work becomes too much me to manage. I currently work 2 days a week as a store assistant in a charity shop and I have a massive urge to leave again woman facepalming. I've not brought this up at work yet as I know there isn't anything they can do other than me go off sick which is something I don't really want to do.

I just wondered if anyone else has experienced this kind of feeling?

Thanks in advance for reading this, it's much appreciated x

Parents

  • Hi - welcome to the community and congratulations on your recent diagnosis! 

    I’m glad to hear that you’ve already requested a referral via your GP for further support. You might not be aware, but (for good reasons) we’re not allowed to offer medical advice here, so you’ve already taken the only step that any of us could suggest on that front.

    Whilst waiting for that support, you might find these NAS resources helpful, including the strategies suggested in the first one:

    NAS - Autistic fatigue and burnout

    NAS - Meltdowns

    There's also some great (free) advice here from Dr Megan Anna Neff - a neurodivergent author (who's also a clinician and advocate):

    Autistic Burnout Recovery: How to Build a Recovery Plan

    I've also just bought this new book of hers. It covers the subject in much greater detail, whilst remaining very user-friendly (including lots of diagrams and worksheets, for example):

    The Autistic Burnout Workbook: Your Guide to Your Personal Recovery Plan

  • in reply to Bunny

     Hello 

    Thank you so much, I have Dr Neffs self care book and I've found it really useful so I will definitely get the work book too. I will check out the NAS pages too. 

    Massively appreciate the replies i feel very lost at the moment and it's nice to speak to people that understand from my point of view.

    Bunny said:
    You might not be aware, but (for good reasons) we’re not allowed to offer medical advice here,

    Thank you for heads up, completely understand and I would always make my first point of call the GP Blush

    Thank you 

Reply
  • in reply to Bunny

     Hello 

    Thank you so much, I have Dr Neffs self care book and I've found it really useful so I will definitely get the work book too. I will check out the NAS pages too. 

    Massively appreciate the replies i feel very lost at the moment and it's nice to speak to people that understand from my point of view.

    Bunny said:
    You might not be aware, but (for good reasons) we’re not allowed to offer medical advice here,

    Thank you for heads up, completely understand and I would always make my first point of call the GP Blush

    Thank you 

Children
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