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Exhaustion is ruining my life

T

Hi,

I'm autistic and I've got this issue with tiredness in that I am always in a near state of exhaustion! I've had burnout before and I know it's not that but it's close. If I go out I spend the next day or two in bed recovering from going out. When it first happened I thought maybe a time of the month thing but as it continued I saw my doctor and she's run tests but nothing serious has come back, so she's thinking it's stress tiring me out.

I've started yoga in the hopes of limiting any stress and the effects it causes but I'm still just as tired as I've always been. I was diagnosed not so long ago and I'm still learning so much about autism but it's confusing and I feel I'm constantly making it worse for myself by not understanding what's going on. I've read autistic people get exhaustion and fatigue and that sucks but it mostly just says about resting but that's not good because I can't do the things I enjoy and it makes me anxious of going out because I know the tiredness will hit hard after.

Feeling a bit lost with it all.

Parents

  • You have to learn to plan, pace and prioritise which is actually quite difficult a lot of the time. If you are going out, build in rest time afterwards. You said you cannot do the things you enjoy. Something has to give. If you want to do the things you enjoy you might need to reduce something elsewhere to accommodate this. If you cannot do this for example because of work or other commitments,  consider adapting doing things you enjoy. I might want to do a certain activity but if its not happening to switch it out for something with less input. There's also nothing wrong with lying there staring into space. For a prolonged period. I have learned this only recently. It's difficult because often I need stimulation to rest but my brain cannot handle more of it.

Reply

  • You have to learn to plan, pace and prioritise which is actually quite difficult a lot of the time. If you are going out, build in rest time afterwards. You said you cannot do the things you enjoy. Something has to give. If you want to do the things you enjoy you might need to reduce something elsewhere to accommodate this. If you cannot do this for example because of work or other commitments,  consider adapting doing things you enjoy. I might want to do a certain activity but if its not happening to switch it out for something with less input. There's also nothing wrong with lying there staring into space. For a prolonged period. I have learned this only recently. It's difficult because often I need stimulation to rest but my brain cannot handle more of it.

Children
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