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Exhaustion is ruining my life

T

Hi,

I'm autistic and I've got this issue with tiredness in that I am always in a near state of exhaustion! I've had burnout before and I know it's not that but it's close. If I go out I spend the next day or two in bed recovering from going out. When it first happened I thought maybe a time of the month thing but as it continued I saw my doctor and she's run tests but nothing serious has come back, so she's thinking it's stress tiring me out.

I've started yoga in the hopes of limiting any stress and the effects it causes but I'm still just as tired as I've always been. I was diagnosed not so long ago and I'm still learning so much about autism but it's confusing and I feel I'm constantly making it worse for myself by not understanding what's going on. I've read autistic people get exhaustion and fatigue and that sucks but it mostly just says about resting but that's not good because I can't do the things I enjoy and it makes me anxious of going out because I know the tiredness will hit hard after.

Feeling a bit lost with it all.

Parents

  • Sorry to read you’re going through this. 

    It does sound like a form of autistic burnout, in that your tolerance is lowered and certain things are taking all your energy away. Are you planning ahead, to ensure you have rest time on either side of the things you want to do? 

    When this happens to me, I think of the amazing Dr Megan Anna Neff who calls it ‘grieving for our limitations’; it somehow reminds me to work with my autism, and not against e.g. not get upset with myself when tired, and to do enjoyable activities at home, or in ways that don’t burn up energy. It’s not just about just resting per se, but going with your interests in a way that’s kind to you, and recognising when too much of the ‘wrong’ stimulation can be harmful  

    Checking out Dr Neff’s site may help understand aspects of your autism, and ‘adjust’ to this new understand of your autistic self, and find strategies that compliment your autistic way of being. Yoga is a great start! 

    Best wishes. 

Reply

  • Sorry to read you’re going through this. 

    It does sound like a form of autistic burnout, in that your tolerance is lowered and certain things are taking all your energy away. Are you planning ahead, to ensure you have rest time on either side of the things you want to do? 

    When this happens to me, I think of the amazing Dr Megan Anna Neff who calls it ‘grieving for our limitations’; it somehow reminds me to work with my autism, and not against e.g. not get upset with myself when tired, and to do enjoyable activities at home, or in ways that don’t burn up energy. It’s not just about just resting per se, but going with your interests in a way that’s kind to you, and recognising when too much of the ‘wrong’ stimulation can be harmful  

    Checking out Dr Neff’s site may help understand aspects of your autism, and ‘adjust’ to this new understand of your autistic self, and find strategies that compliment your autistic way of being. Yoga is a great start! 

    Best wishes. 

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