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Autistic catatonia

NAS87573

Hi. I am new to this site, my mum is typing this as I am not able to think straight. I am 22 and have been very ill with autistic catatonia for over a year. I have had 16 Ect treatments and this made a difference for a while. But I now feel I am declining . Has anyone had any experience of this? Thank you

  • in reply to DeSpereaux

    Oh, you're welcome, DeSpereaux! I used to be a librarian so I'm quite good at finding information. I'm glad if it can help you. Relaxed️

  • in reply to This Person (Ottilie)

    I have looked for a comprehensive explanation for this, for the purposes of justifying the adjustment that I need forever, this is the right answer for me, I’m sure of it..:D

  • in reply to This Person (Ottilie)

    This has got to be one of the most informative replies that I have ever seen on this website, to me this stuff is ground-breaking and IS not represented in core-autism-literature, I’ve completed whole level-2 courses and been on specialist-session about autism, that have not broken any new-ground for me.
    I believe that the main focus of autism should be on getting the basics out into society, but the main-focus is on trail-blazing, yet I have witnessed very-few new-items of information, even with the current societal-mission.
    So thank you very much, I don’t know whether I have successfully expressed my feelings, but my intentional is to commend you..:)

  • Hello, and hello mum! Wave

    I'm sorry that you've been so ill and I hope you can feel better soon. 

    There is a page here about autistic catatonia: 

    https://www.autism.org.uk/advice-and-guidance/topics/mental-health/catatonia/autistic-adults#:~:text=Autism%20and%20catatonia%20share%20some,pattern%20of%20activities

    I don't know if any of that information helps you because you've probably done lots of research already, but at the bottom of the page is a link to a woman's YouTube channel. She has had episodes of catatonia and has made videos about it. There may be some information in there that may help. 

    I also found this vlog: 

    https://www.stephaniebethany.com/blog/autism-and-catatonia

    Also, Jamie Knight, one of the presenters on 1800 Seconds on Autism on BBC Sounds, has episodes of extreme shutdown (I don't know if he calls his experience catatonia). He talks a bit about it in the episode "I don't know how much pain I'm in".

    Those are the experiences I have come across. I hope that helps and wish you a speedy recovery. 

  • Ive struggled with the definition of catatonia, and also the stereotype of catatonia, as prior to learning of the autism literature, I measured my understanding of catatonia against the movie K-Pax.
    Having said that, I used to have a high-pressure job in which it was simply unacceptable to overload, instead of being seen as having-had-enough, my bosses used my freezing as a cue to start pushing me. I used to find myself blacking-out as a felt too pressurised to meltdown, I used to find myself losing hours to my sub-concious, only coming-to at the end of the day. I used to go into work everyday will less and less ability to resist slinking into my inner-world, being completely enthralled and enamoured by it, only to have it evaporate and forgotten as I came-to. What seemed-like moments was actually 2-3 hours.  
    Back then I didn’t have any words to describe it, so I just called it acute-daydreaming, I thought of catatonia as nothingness, and I suppose that I was in a nothing-state, but it feels a lot different to be something and to observe something from afar.