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Struggling with getting my parents to understand me

HMO

I'm 25, was diagnosed at 8. I still feel I have to articulate to my parents that I'm not happy with pressure being placed on me to live a so called normal life.

I'm awful at being assertive so I don't know how to navigate this.

I want to find an advocate or something but I don't know if the National Autistic Society would help. It has really been piling up and my energy levels have depleted.

Parents

  • Oh you need some help from some where, for sure.

    The NAS don't have a general advice line any more, but they host this and we're here.

    What is it you want to communicate to your parents exactly?

    And, no you don't have to live a "normal" life. You can live a better than "normal" life if you live it YOUR way. Hell, we were just not born for "normal". Who cares about "normal"?

    We'll help you navigate this. Break it down bit by bit and chuck out your questions here.

Reply

  • Oh you need some help from some where, for sure.

    The NAS don't have a general advice line any more, but they host this and we're here.

    What is it you want to communicate to your parents exactly?

    And, no you don't have to live a "normal" life. You can live a better than "normal" life if you live it YOUR way. Hell, we were just not born for "normal". Who cares about "normal"?

    We'll help you navigate this. Break it down bit by bit and chuck out your questions here.

Children
  • in reply to Dawn

    I made these notes a while back. I might as well post the full lot. This is basically what I'm struggling with.

    - Parents have attempted to 'treat' autism and suggested autism is a personal biological 'problem' with me. This has made me feel a lot of internalised guilt

    - Parents have put considerable pressure on me to behave in a neurotypical manner and mask my autism. This has reached a point where I constantly have to mask, even in my own home and feel exhausted. I reach burnout very easily which exacerbates my autism

    - Stressful conditions within the home has made my mental health deteriorate to the point of suicidal ideation

    - The lack of understanding surrounding structure has led to confusing household rules. I am constantly hypervigilant as my behaviours are always perceived as wrong, even when I am following their rules

    - I am infantilised and my capacity is questioned. My parents have opened my post and I am under considerable pressure to get married

    - I am not comfortable in my home but I do not feel that I have full independent living skills and feel I cannot leave

    –

    - I need support speaking to my parents to give them this information. I find it hard to articulate and I am concerned that I will not be understood when speaking from an emotional place.

    I require an advocate to support me in delivering this information as I may reach a point where I struggle with my verbal language

    - English is not my parents first language and there are cultural differences that may impact their understanding. It may be more appropriate for them to have cultural context surrounding my disability

    - I need information surrounding autism to be tailored to me. Many resources are centred around supporting autistic children which is no longer relevant to my experience. Information needs to be in regards to the lived experience of autistic adults

    - I am already aware of social groups for myself. I speak to other autistic adults and am active in the autism community. I am not seeking adult social groups