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An app to help prevent suicide in ASD?? Comments please

DaveAsperg

I have been working with other major players to develop an app to help Aspies with suicidal ideation as I have found psychotherapy and antidepressants haven't helped me at all, but others with Lived Experience can say very useful things. 

I feel "the experts" often dominate the conversation and always feel they know best, but an app with power to the Aspies to comment and advise??

What do you think??

Those involved include Prof Simon Baron Cohen and Sarah Cassidy ( check them out if you don't know them)

Recent post  such as "I don't enjoy anything anymore" indicate many of us ruminate on negative thoughts??? do we

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  • in reply to Chris

    No, my thinking is I like algorithms for problem solving and suicidal ideation is a big problem for us, but the standard authoritative response is

    1.phone Samaritans ( but they don't give advice , just listen, and may make you feel humiliated and inadequate)

    2. phone one of the other "helplines", who will listen for a short time, but then suggest you see your GP or psychiatrist

    3. see a GP, who may start antidepressants and refer you to a psychiatrist

    4. see a psych ( after a long wait) who may refer you to a psychologist

    5. see a psychologist who is strictly limited to time and number of reviews and may not help , before you are discharged

    6. this has been a year or more so far in this and it's called "pass the patient around" when you can't sort the problem out

    7. You may not be alive by now as you feel such a nuisance and so hopeless that life becomes intolerable

    so....... my idea is a logical algorithmic app than will have input from aspies  about our demographics and what we have found useful for our situation eg inadequacy at work, financial problems, legal issues etc

    The choices will be computer based solutions that are instantly available eg course in mindfulness, positive affirmation, hypnosis, exercise, meditation etc

    Each solution will be marked with regard to effectiveness and so those going onto the app will be able to put in their info, get recommendations and start effective management immediately . Also their input will feed into the database (gdpr protected ) about usefulness of treatments in relation to certain demographics... and so the database increases in size and effectiveness ????/

    What do you think??

    Personally I would feel very good and proud if I felt I was using my horror of suicidal ideation to benefit others 

  • in reply to Chris

    If you use apps, Chris, you might want to sign up to the volunteer list for Cambridge University's Centre for Autism Research.  On Dave's recommendation, following his previous post about the app, I did that.  They send out an e-mail now and again asking for autistic volunteers to do a few quizzes or participate in other research projects.  If the parameters of the project apply to me, I do it.  I had one invite in the last few days about the use of apps, which I assume is the project Dave is talking about.

    Otherwise have a search of the site here for Dave's previous post about the app. :-)