An app to help prevent suicide in ASD?? Comments please

I have been working with other major players to develop an app to help Aspies with suicidal ideation as I have found psychotherapy and antidepressants haven't helped me at all, but others with Lived Experience can say very useful things. 

I feel "the experts" often dominate the conversation and always feel they know best, but an app with power to the Aspies to comment and advise??

What do you think??

Those involved include Prof Simon Baron Cohen and Sarah Cassidy ( check them out if you don't know them)

Recent post  such as "I don't enjoy anything anymore" indicate many of us ruminate on negative thoughts??? do we

  • the problem is that two autistic people are not the same and requires tailored response of action in each individual case. Not all autistic people are in the same circumstance as the same individuals suggesting and coding the application solutions.

    their is also the issue with the interpretation of language which could result in advice or instruction being miss understood and performed incorrectly.causing harm. Face to face support failed you because it wasn't funded or operated properly, i do admit are somewhat a problem.

    Mindfulness is a load of absolute rubbish. It doesn't teach long term or sustainable techniques in managing stress, anxiety or depression and doesn't take into account the scale of neurodivergent individuals thought process or numerous sensory differences. 

    Their are creative thing that are now starting to occur amongst the autistic community up and down the country. councils are making more social inclusions events for autistic individuals.

    Autism partnerships are using technology and resources like gather,town to have mental health conversations and compare what coping strategies amongst autistic individuals are working.autistic individuals are at this point in time choosing not to attend them which will result in the opportunities being discontinued.

    A lot of the mental health issue impacting both autistic and neurotypicals are environmental & social economic and until the entire world figures out that people need the basic of food, shelter, water and space the mental health crisis is going to continue and get worse.  

  • not me. I like research based comments of fact with numbers and further options if one route doesn't work.

    I have found face to face stuff has been extremely damaging, got me arrested and prosecuted, which would never have happened with an app.

    Mindfullness instructions written by an Aspie for suicide prevention are a rarity that I would welcome. 

    I feel we Aspies have skills and understanding, that would enable us to produce extremely useful online advice articles, that neurotypicals cannot do.

    Complaints systems now just send you around in circles

    And where is the peer expert support? The research has not been done, the peers are just on here and vary in age and demographics

  • what depresses me is (mostly) my circumstances and not the condition itself.

    If you've written an app that makes an aspie's situation better, so that one is not at the end of every queue with no money, (or worse being squeezed out by some brainless overly socialised normie, yeah, that might be helpful to someone... 

  • Do you give YOUR time and effort away doctor?

    My experience was "free" because I made it myself out of someones discarded material. I was also doing a cat who required 1/40th of the dose of a human being. So it would have been cheap anyway. It's still WAY cheaper than if big pharma did it...

  • an application isn't going to do anything for someone with crippling anxiety, depression or stress. It's like the mindfulness stuff that failing mental health trust send out in leaflets thats tell you to take a bath, have a cup of tea, splash cold water in your face or have a cold shower

    What people in that situation need is face to face peer support to help the individual learn coping strategies' in a proactive way to help them get through stressful and anxiety inducing tasks. That is accessible, affordable and doesn't have a waiting list of over a year. 

    Talking to someone how you feel isn't going to help you process it unless your with someone else with the same neurological processes then you have the barrier for many on the spectrum who have problems understanding and processing emotions

  • sounds pretty whacky to me. Watch out for expensive salesmen making big personal profits!! But if they're giving it away, without fees ......lovely

  • No thank you for posting this. I found it very inspiring actually and helpful. I will look up RSO it could be of some use for me, check out the videos. The hosp are basically done with me now, think they gave up on me. So if there's something else I can look into and give a try then I will :) 

  • No, my thinking is I like algorithms for problem solving and suicidal ideation is a big problem for us, but the standard authoritative response is

    1.phone Samaritans ( but they don't give advice , just listen, and may make you feel humiliated and inadequate)

    2. phone one of the other "helplines", who will listen for a short time, but then suggest you see your GP or psychiatrist

    3. see a GP, who may start antidepressants and refer you to a psychiatrist

    4. see a psych ( after a long wait) who may refer you to a psychologist

    5. see a psychologist who is strictly limited to time and number of reviews and may not help , before you are discharged

    6. this has been a year or more so far in this and it's called "pass the patient around" when you can't sort the problem out

    7. You may not be alive by now as you feel such a nuisance and so hopeless that life becomes intolerable

    so....... my idea is a logical algorithmic app than will have input from aspies  about our demographics and what we have found useful for our situation eg inadequacy at work, financial problems, legal issues etc

    The choices will be computer based solutions that are instantly available eg course in mindfulness, positive affirmation, hypnosis, exercise, meditation etc

    Each solution will be marked with regard to effectiveness and so those going onto the app will be able to put in their info, get recommendations and start effective management immediately . Also their input will feed into the database (gdpr protected ) about usefulness of treatments in relation to certain demographics... and so the database increases in size and effectiveness ????/

    What do you think??

    Personally I would feel very good and proud if I felt I was using my horror of suicidal ideation to benefit others 

  • I provide it seems an alternative take on many things. When I see the trigger word cancer, I tend to react with "have you heard about Rick Simpson Oil?" If pressed I can quote a personal example of seeing it work... But I think people should take their own journey off the beaten path. I found Rick Simpsons Videos credible enough to try it myself. Also a Google of IVERMECTIN and CANCER looking ONLY at credible sources of information is a bit of an eye opener. With the big C there's a lot of discovery been done recently, why wait for 50 years to learn about it is my motto. I'm not sure yet about the Ivermectin inf 1. Because it came from official sources, and I don't trust them & 2.Unlike the RSO I've not seen it work as a tumour remover which I have seen the RSO do quite well.

    I hope you don't mind my information, but I don't think traditional oncology is quite cutting it for the few people I've seen get the Big C. and it seems worse to keep quiet when I've seen things (RSO) others have no chance to, because they are prohibited by law from seeing, and are of "better character" than I.. 

  • I think this is a good idea. I struggle a lot, cancer, mental health, it would be nice to have such an app to go to when things overwhelm me. Oc there's apps and people out there but so far I've never found anywhere or anyone who understands autism.

  • I think that having an outlet for help like this for aspies would be nice, because we share similar experiences and struggles together, and sometimes having other people who understand the depth of how hard it can be to be aspie sometimes can really be helpful and uplifting, and enough to get through the darkest of days. 

  • I think we 'spergs are a vastly under used resource, and anything that can leverage the pool of naked creativity that we represent, to solve a real world problem (which it sounds like you are trying to do) is interesting...

  • Glad you're making progress with this.  

  • If you use apps, Chris, you might want to sign up to the volunteer list for Cambridge University's Centre for Autism Research.  On Dave's recommendation, following his previous post about the app, I did that.  They send out an e-mail now and again asking for autistic volunteers to do a few quizzes or participate in other research projects.  If the parameters of the project apply to me, I do it.  I had one invite in the last few days about the use of apps, which I assume is the project Dave is talking about.

    Otherwise have a search of the site here for Dave's previous post about the app. :-)

  • do you mean an app where we can all talk to each other when we feel suicidal?