Daughter just diagnosed at 16 really need some help!

Hello everyone, thank you for taking the time to read my post I will be very grateful if you could help us in anyway at all!

My daughter has had a hard life since birth and myself and partner knew something was not right with her! Even more so after having 3more children. However we never got the help we should had and if I was to go into everything I think you would give up reading my post! 

To cut a long story short my daughter is almost 16 she has been under CAMHS for 10years (unhelpful) they have been! She would not go to school and we was taking to court! Our solicitor had a doctor come do assessment's on her and finally after months of tests and assessment and years of hard work raising her we are told she has Asperger's

We really are at our wits end and so so worried about her we love her with all our heart and can not see her like this no more! She don't leave her room she has very bad anxiety and depression disorder she will not socialize at all!! The doctor who diagnosed her was absolutely amazing and said she feels for our daughter deeply she said she tells parents with children the age of 5 we need to do something now before they end up like this! She said the this is our daughter (not in a mean way) she says the system let our daughter down!

The reason we come to you for help is we don't know where to turn or much about Asperger's, CAMHS are no help at all and I don't know what help is available for her. Can you help us with any advice such as sites we can visit help we can access things she maybe entitled to? Any help will be greatly appreciated. I apologize for such a long post and if you have made it to the end I thank you so much for your time and any advice you can offer us. Thank you 

Parents
  • Hi,

    I have just joined the forum today after my daughter (also 16) was diagnosed on Monday this week! You could be telling my daughters story. 

    She has been depressed for about 5 years, we sought help but got nowhere, then last year she told me that every day she wishes she was dead - I sought GP help immediately and she was diagnosed with dyslexia (first we heard this suggested as she reads and writes very well, but struggles with recall and explaining things) social anxiety and  this week Aspergers...She experiences social anxiety more than most of the other symptoms and was hurt many, many times at school by teachers as well as friendships. She is lonely although she has NT friends it is clear she doesn't really enjoy what they enjoy.

    She needs a social life that is right for her, that might be sitting in her room with a good friend, or doing something that she feels comfortable doing,  she is actually quite adventurous..

    Anyway, like you we are at the start of the next chapter. I really want her to meet like minded people her age but don't know where to start..

Reply
  • Hi,

    I have just joined the forum today after my daughter (also 16) was diagnosed on Monday this week! You could be telling my daughters story. 

    She has been depressed for about 5 years, we sought help but got nowhere, then last year she told me that every day she wishes she was dead - I sought GP help immediately and she was diagnosed with dyslexia (first we heard this suggested as she reads and writes very well, but struggles with recall and explaining things) social anxiety and  this week Aspergers...She experiences social anxiety more than most of the other symptoms and was hurt many, many times at school by teachers as well as friendships. She is lonely although she has NT friends it is clear she doesn't really enjoy what they enjoy.

    She needs a social life that is right for her, that might be sitting in her room with a good friend, or doing something that she feels comfortable doing,  she is actually quite adventurous..

    Anyway, like you we are at the start of the next chapter. I really want her to meet like minded people her age but don't know where to start..

Children
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