Published on 12, July, 2020
Hello everyone! My youngest son (12) has finally been diagnosed today, 10 years after I first called my health visitor in tears. I know this isn't the end of the journey, and perhaps I should be sad, but I've always known and finally, FINALLY, this might mean that his mainstream school will take notice and provide adequate allowances for Jack's behaviour. So far, he has narrowly missed exclusion many times and was labelled a naughty boy (he also has ODD, possibly PDA, anxiety and dyslexia)
But just wanted to say hi to everyone and I look forward to getting to know everyone.
Happy Otter X
Hi Faith35, our little boy doesn't yet technically have a final diagnosis either so we know how you feel. We know he's on the autism spectrum - he's non-verbal at the moment and has other characteristic behaviour, but my family in particular almost seem to dismiss it and think I'm over-reacting. I know bringing up any toddler is difficult, but autism seems to have an impact on all aspects of life - behaviour, eating, sleeping.....so it is really hard! I also find it very difficult seeing toddlers of family/our NCT group. Obviously I'm very happy for them, but seeing other toddlers who are developing so rapidly and seemingly with ease is heartbreaking when you see your little one struggling.We are also trying to focus on the here and now but it's extremely difficult not to worry about the future and picture what life might be like for our whole family.
At the moment I'm making a real effort to choose positivity - a positive mind attracts a positive life - isn't that what they say?! Our little boy is a gorgeous little guy and others have recommended an intensive interaction programme and also ABA which we're hoping to try, so maybe they'll make a difference.
So sending lots of positive thoughts! x