New to this No idea what I'm doin

Hi everyone soo my son age 4 just been diagnoised with autism he is at mainstream school and doea get a lot of support 14 hours I belive with a one to one also has the teaching advisorery come in and help make suggestions on things the school can do to help him so we been to see peadatrician s and who have filled us with info etc and told us of this website and carers website etc and saying if we want help support we have to shout for it and we are not told what it is we wld do all up to us but I have no idea what it is I need my child needs I feel lost overwhelmed and although my son has autism I belive as a family we do manage is behaviour very well the things we struggle with is new clothes hair cuts loud places like being at thr thearter discos etc and he is behing socially but he is trying so much to socialise with the other children and all the teachers say how well he is doing apart from the odd hitting and lickin with the teachers she he doesn't want to do something so anyway I don't know where I go from here no idea at all any help guidance in right direction wld be Fab !

Parents
  • Hi Twinkletoes 85, welcome to the site Smile.  It can take a while to get used to a diagnosis - there's a lot to learn.  I'd concentrate on how autism affects him as an individual, because everybody's different.  From what you say it sounds like he's got sensory issues such as various noises, maybe finding clothing scratchy/rough, also licking things - taste.  Do you think the 14 hrs he has in the school week is enough?  How much 1-1 is that each day or does it vary, depending what they're doing?  If I were you I'd have a good look around the site via the home pg + the posts.  There's loads of info but you can't learn it all at once.  Bite sized chunks is prob the best way.  I've found you can learn the theory by reading + talking to other parents, teachers, professionals etc but you also have to try your best to understand autism at an emotional level.  I don't think you can ever fully understand it if you're neuro-typical ( = not autistic), but I think it helps if you can imagine being in his position, even if not entirely.  So you're embarking on a journey with your little 1.  You are the most important person in his life.  I know you'll be a big help to him as you both learn together.  Gd luck with everything.  Come on here anytime you want + ask whatever you want. Smile

Reply
  • Hi Twinkletoes 85, welcome to the site Smile.  It can take a while to get used to a diagnosis - there's a lot to learn.  I'd concentrate on how autism affects him as an individual, because everybody's different.  From what you say it sounds like he's got sensory issues such as various noises, maybe finding clothing scratchy/rough, also licking things - taste.  Do you think the 14 hrs he has in the school week is enough?  How much 1-1 is that each day or does it vary, depending what they're doing?  If I were you I'd have a good look around the site via the home pg + the posts.  There's loads of info but you can't learn it all at once.  Bite sized chunks is prob the best way.  I've found you can learn the theory by reading + talking to other parents, teachers, professionals etc but you also have to try your best to understand autism at an emotional level.  I don't think you can ever fully understand it if you're neuro-typical ( = not autistic), but I think it helps if you can imagine being in his position, even if not entirely.  So you're embarking on a journey with your little 1.  You are the most important person in his life.  I know you'll be a big help to him as you both learn together.  Gd luck with everything.  Come on here anytime you want + ask whatever you want. Smile

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