Published on 12, July, 2020
I have been a full time carer, strong, able to lift another.
Now I am a shadow of myself, awaiting diagnosis which will hopefully be of some use.
How many I wonder are strong in their youth and crumble increasingly as their mid years progress. Becoming old before their time.
Being a wheelchair bound wreck and being somewhere at the upper end of the ASD spectrum, is really no fun at all.
crystal12 I exist in a state between sleep and awake for much of the time, depressions move over me like clouds in a sky.
I am regestered both here and another site with the same name. Reading other peoples posts is enlightening. I new so little about the problems that are common to so many.
As for medication, I have a 'codeine' prescription waiting to be picked up by someone, its a ten minute walk, but may as well be on the far side of the moon for me. That is something I will not live on, its for occasional use only. Other than that I use whole roasted coffee bean, its not the caffine that works.
I could help another, only if I can be taken, I rely on a wheelchair with power assistance.
Adult Social Care know, I have told them, that I am now 'support group' on ESA, that puts me on the 'critical' waiting list, instead of what ever list I was on before. DWP backdated a full year my payment! Being on the 'Aspers' waiting list, seems to make them less keen on having anything to do with me, I did have a social worker earier in the year for a brief time, then thrown at the NHS referal system for Mental Health, that promptly went to sleep, needing me to awake it, the system is crudging hoping one will go away or die, I don't think it cares. At least I am now on dry land, I was on a boat.
As far as I know, I have to buy my own care, when I get PIP.
The local council is low on funds, so is rationing whats left. I am intelligent and good on the phone, I did support for many years. I have a backdated payment from the DWP, so I can look after myself until April? I suspect that is the case anyway.
It could be worse, much, much worse, I could still be on the boat!
So if I could be of help, I would love too. I can still talk, over the phone there are no visual clues to get wrong.