new and a lil scary

i recently was diagnosed last year as an 32 year old woman and it’s felt so isolating and lonely. it’s like you spend your whole entire life feeling misunderstood to then have all the answers and not know what to do with it or anyone to share it all with. is this normal after a diagnosis? :/

Parents
  • Hi and welcome, 

    Congratulations upon your diagnosis. You have described, very nicely, what many people feel immediately after their diagnosis. So, it does appear quite normal and it certainly happened to me. A diagnosis is so much more than a piece of paper and took me months to get to grips with. 

    You have found this site where many people have gone through this stage. So, you are not as isolated or lonely as you were. It may be worth looking at some of the messages from other people regarding "just been diagnosed". 

    Even after several months I am finding new aspects to my diagnosis.  I will wonder why do I always do this or say that, etc. and then I realise it is just part of my autism. After 70 years there is a lot make sense of.  Just after my diagnosis I did spend some time looking at my past. Then I realised it was fruitless as it wouldn’t change anything. I found looking to the future much more helpful and enjoyable. 

    The general advice to people just diagnosed is simply to take your time and be kind to yourself.

    Best wishes,
    Oscar 

Reply
  • Hi and welcome, 

    Congratulations upon your diagnosis. You have described, very nicely, what many people feel immediately after their diagnosis. So, it does appear quite normal and it certainly happened to me. A diagnosis is so much more than a piece of paper and took me months to get to grips with. 

    You have found this site where many people have gone through this stage. So, you are not as isolated or lonely as you were. It may be worth looking at some of the messages from other people regarding "just been diagnosed". 

    Even after several months I am finding new aspects to my diagnosis.  I will wonder why do I always do this or say that, etc. and then I realise it is just part of my autism. After 70 years there is a lot make sense of.  Just after my diagnosis I did spend some time looking at my past. Then I realised it was fruitless as it wouldn’t change anything. I found looking to the future much more helpful and enjoyable. 

    The general advice to people just diagnosed is simply to take your time and be kind to yourself.

    Best wishes,
    Oscar 

Children
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