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New here - hello!

Angelina

Hi - I'm new to this site.  Over the years I've suspected that my daughter  was on the spectrum.  After numerous assessments with various people we finally have a diagnosis.  

I guess at the moment I'm finding it really tough to deal with.  She is very unpredictable and can become angry, panicky, insecure, physical almost with out warning and is particularly horrible to us as parents and also her siblings .  I feel she wears me down and at times I feel as if she causes me to almost have panic attacks as she can spiral out of control so quickly and causes chaos within the house.

Anyway, I just wanted to say hi and am looking forward to using the discussion forum to help keep me sane!

Parents

  • Hi! Thanks for replying. She's 9 ( her sister is 11 and her brother 5).  Yes the diagnosis is new ( confirmed just before the summer).  It may sound strange (and hard to admit) but I feel as if I'm grieving for the child I thought I had ... Does that make sense? I worry for her and her future. We are up and down coping with it. Sometimes we're calm and support each other and other times we all blow up and argue. She has recently been recognising she is different from others and we have had some really sensitive conversations around this.  Her biggest triggers are time ... She can't organise herself, and even with a constant count down always panics at the end as she's not ready. The other big trigger is if she doesn't get her own way / things don't go to the plan she has in her head.  

    I find trying to balance home, my daughter, the others and work an emotional nightmare and feel as if I'm suffocating sometimes. Does that make sense??

Reply

  • Hi! Thanks for replying. She's 9 ( her sister is 11 and her brother 5).  Yes the diagnosis is new ( confirmed just before the summer).  It may sound strange (and hard to admit) but I feel as if I'm grieving for the child I thought I had ... Does that make sense? I worry for her and her future. We are up and down coping with it. Sometimes we're calm and support each other and other times we all blow up and argue. She has recently been recognising she is different from others and we have had some really sensitive conversations around this.  Her biggest triggers are time ... She can't organise herself, and even with a constant count down always panics at the end as she's not ready. The other big trigger is if she doesn't get her own way / things don't go to the plan she has in her head.  

    I find trying to balance home, my daughter, the others and work an emotional nightmare and feel as if I'm suffocating sometimes. Does that make sense??

Children
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