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Hello.

SW

I'm 51 and was diagnosed with level 2 ASD in February (although I've suspected I had Aspergers for years). I don't normally use social media channels, but as the only post-diagnosis support the NHS offered me was a link to this website... here I am. Has anyone else found that rather than their diagnosis providing clarity and understanding of why they're like they are (as my GP suggested), they instead feel much worse than before? Mainly I feel anger - that none of the mental health professionals who saw me in my teens did their job properly. If I'd been correctly diagnosed then (rather than with clinical depression and anxiety), how different might my life have been? Anyway, hello everyone (sorry, should have said that first), hopefully at least I'll encounter some people who understand what it's like here.

Parents

  • Hello.

    I felt sadness, loss and grief.

    But 30-40 years ago knowledge and thinking were quite different. It was viewed more negatively with more stigma. The diagnostic criteria were different too. And adult diagnosis 30 years ago was very rare or impossible I believe.

    While it is frustrating, it will eat you up if you descend too much into the what-if scenarios.

    It is also easy to start looping based on a idealised perfect life. But it is not realistic. If course, knowing that does not stop the thoughts.

    The reality is you can't know what would have happened. It has taken me a year to come to terms with these things. It still hurts though.

    The challenge is to try to live in the moment, and make changes to allow more capacity to have things to look forward to in the future.

Reply

  • Hello.

    I felt sadness, loss and grief.

    But 30-40 years ago knowledge and thinking were quite different. It was viewed more negatively with more stigma. The diagnostic criteria were different too. And adult diagnosis 30 years ago was very rare or impossible I believe.

    While it is frustrating, it will eat you up if you descend too much into the what-if scenarios.

    It is also easy to start looping based on a idealised perfect life. But it is not realistic. If course, knowing that does not stop the thoughts.

    The reality is you can't know what would have happened. It has taken me a year to come to terms with these things. It still hurts though.

    The challenge is to try to live in the moment, and make changes to allow more capacity to have things to look forward to in the future.

Children
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