Introduction - dropping the mask

Hi everyone,

I’m new to the forum, so I wanted to introduce myself. I’m a 52-year-old man, and I’m here because I’m trying to understand autistic burnout and what recovery might realistically look like.

I’ve had a lot of good things in my life. I have a beautiful, very supportive partner and two lovely children, one of whom is autistic. I’ve also spent much of my working life working with autistic young people, and I think I suspected (or knew) I was autistic from the moment I started doing that work. There was a recognition there that I couldn’t quite ignore. Within my professional sphere I'm senior and well respected - but that being said I don't feel able to continue.

What I didn’t appreciate, though, was the degree to which I was masking. I think I built a life around coping, adapting, reading situations, managing other people’s expectations, and pushing through. For a long time I could do it, or at least I thought I could. But now I feel like I can’t do it anymore.

At the moment I’m really struggling. I’m finding it hard to get out of bed, I’m exhausted all the time, and my sleep is all over the place: sometimes I sleep a lot, and sometimes I barely sleep at all. My hair is falling out, and I have high blood pressure. I've changed frorm someone who was comfortable managing a team or speaking in front of a grouo od expers, and right now I struggle to organise and cook a simple meal. I know some of that needs proper medical attention, and I’m not looking for medical advice here, but I do feel as though my body and mind are telling me very clearly that I can’t carry on as I have been. It's deeply unsettling. I don't know who I am any more.

The exhaustion feels deeper than ordinary tiredness. Things I used to manage now feel much harder, and I’m trying to understand what has happened without turning it into self-blame. I’m also trying to work out what recovery means when masking has been such a big part of how I got through life.

I’d really value hearing from other autistic adults, especially people who have experienced burnout in midlife or after years of masking. How did you recognise what was happening? What helped you recover or reduce the pressure? Were there things you had to stop doing, change, or accept? And where am I meant to turn for help?

I’m not looking for medical advice, just lived experience and peer support from people who understand this from the inside. I’m hoping this might be a place where I can be honest, learn from others, and feel a bit less alone.

Thanks for reading.

Parents
  • Hey Cool Banana. I'm in the same boat right now. 44 and recently diagnosed ADHD and ASD. I'm exhausted, burnt out and my nervous system is in a constant state of dysregulation. I live alone and can just about feed myself at the moment. I've worked in law firms for 24 years, had an active social life, was an avid rock climber, musician and had several amazing relationships. Right now all I can manage is meditation in a dimmed room, sleeping and sometimes an audio book or TV. I've had problems for years and did a lot of research before it got to this point so luckily I have a deep knowledge of what's happening otherwise it'd be really scary. It's a fight. The ASD wants low stimulation and the ADHD wants stimulation. Sometimes even watching TV is overwhelming. I have to watch stuff I've seen before as I can't follow a storyline. Even audiobooks are overwhelming some days, just hearing people voices. I think I really got rock bottom on Monday after several days of deep meditation. I calmed myself so much, my body had very little cortisol and adrenaline in it, which was great, but that's all my body was running on and without them it was a horrible day but maybe necessary. I was worrying a lot before about getting back to normal but I know that wasn't good for me so i will need to love life differently in the future but for the moment I'm on completed survival mode. I'm tuning into my body and getting not to overthink, which is hard but the meditation is helping. I have to wait another 10 months for ADHD medication. I'm trying to work out what sits at the root of my problems but it seems to be a mixture. I did start with a psychologist but I didn't have confidence in her and she's bailed on me anyway. I'll be looking for a somatic therapist next as the talking therapies aren't doing the job. I think learning to understand body feelings is vital to making progress. 

    I have literally have stripped back to the bare bones. I do as little as possible. I'm off work, I've dropped everything non essential and my day is built around survival. Joining appropriate channels on YouTube and insta has helped me understand what's happening has been a huge comfort. I have tools to help me cope with the overwhelm and dysregulation and I'm lucky I have support from work and family/friends. I've taken as much pressure off as possible for the moment so no plans for anything at all. I do what I can, when I can. I've been contacted by the emergency mental health crisis team for the days when I can't cope and I may need help and I've made a list of the things I can do if I have any capacity.

    The most helpful knowledge I've gained is regarding overwhelm/nervous system regulation. I've learned about polyvagal theory and some somatic practices. How to read the feeling on my body, what they mean and the action I need to take. Pushing through can make things a lots worse so be kind to yourself and after so many years of helping others, make yourself the priority. No shame. Do what you need, when you need it. Take the time to rest and learn what's good for you no and what in the past was you trying to be neuro typical. There are resources on how to drop the mask, which takes time to learn. Find activities which are calming for your nervous system and not overwhelming and try and learn who you really are.

    I think I've almost written a book there. Sorry. I've been on my own for a while and got carried away. 

Reply
  • Hey Cool Banana. I'm in the same boat right now. 44 and recently diagnosed ADHD and ASD. I'm exhausted, burnt out and my nervous system is in a constant state of dysregulation. I live alone and can just about feed myself at the moment. I've worked in law firms for 24 years, had an active social life, was an avid rock climber, musician and had several amazing relationships. Right now all I can manage is meditation in a dimmed room, sleeping and sometimes an audio book or TV. I've had problems for years and did a lot of research before it got to this point so luckily I have a deep knowledge of what's happening otherwise it'd be really scary. It's a fight. The ASD wants low stimulation and the ADHD wants stimulation. Sometimes even watching TV is overwhelming. I have to watch stuff I've seen before as I can't follow a storyline. Even audiobooks are overwhelming some days, just hearing people voices. I think I really got rock bottom on Monday after several days of deep meditation. I calmed myself so much, my body had very little cortisol and adrenaline in it, which was great, but that's all my body was running on and without them it was a horrible day but maybe necessary. I was worrying a lot before about getting back to normal but I know that wasn't good for me so i will need to love life differently in the future but for the moment I'm on completed survival mode. I'm tuning into my body and getting not to overthink, which is hard but the meditation is helping. I have to wait another 10 months for ADHD medication. I'm trying to work out what sits at the root of my problems but it seems to be a mixture. I did start with a psychologist but I didn't have confidence in her and she's bailed on me anyway. I'll be looking for a somatic therapist next as the talking therapies aren't doing the job. I think learning to understand body feelings is vital to making progress. 

    I have literally have stripped back to the bare bones. I do as little as possible. I'm off work, I've dropped everything non essential and my day is built around survival. Joining appropriate channels on YouTube and insta has helped me understand what's happening has been a huge comfort. I have tools to help me cope with the overwhelm and dysregulation and I'm lucky I have support from work and family/friends. I've taken as much pressure off as possible for the moment so no plans for anything at all. I do what I can, when I can. I've been contacted by the emergency mental health crisis team for the days when I can't cope and I may need help and I've made a list of the things I can do if I have any capacity.

    The most helpful knowledge I've gained is regarding overwhelm/nervous system regulation. I've learned about polyvagal theory and some somatic practices. How to read the feeling on my body, what they mean and the action I need to take. Pushing through can make things a lots worse so be kind to yourself and after so many years of helping others, make yourself the priority. No shame. Do what you need, when you need it. Take the time to rest and learn what's good for you no and what in the past was you trying to be neuro typical. There are resources on how to drop the mask, which takes time to learn. Find activities which are calming for your nervous system and not overwhelming and try and learn who you really are.

    I think I've almost written a book there. Sorry. I've been on my own for a while and got carried away. 

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