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New here, failed to be diagnosed.

autistic79

Hi.

I have for my entire life always felt socially interacting with people is a puzzle I could never solve, my hatred of loud noise, writing problems, lack of social humour, and reptitive body movements, my difference was picked up as an infant by other children and some teachers, including head teacher, but I was never diagnosed.  

I recently had a autism assessment, where the assessor acted aggressive and inappropriate, refused to talk about symptoms, only concentrating why no one referred me other than GP, refused to talk to my older sister, and I am not surprised to say I ended up with a diagnosis of depression, it took almost a year to get the referral done, and that fight now needs to start all over again.

When I started learning about autism, it provided all the answers to my symptoms, and reading the information on this website fits me perfectly, yet a professional couldnt put the pieces together which has led me to questioning myself.

I hope I am accepted here based on my own diagnosis, my family do support me.

Parents
  • autistic79 said:
    that fight now needs to start all over again

    Unfortunately, I had a very similar horror show experience - I am so very sorry to hear that you were another person to have walked that path too.  The difference between my first and second assessment experiences was quite frankly summarised as the difference between "abuse" versus "care".

    My (eventual) diagnosis was received as an adult, very late (in my late 50's) ...with me being the least-surprised person to hear the second set of feedback points.

    I believe putting ourselves, as later adults, through the assessment process can often be very demanding and disruptive.  However, I am glad that I persevered.  It has helped me to learn a lot and begin to apply those learning points. 

    It has also helped me to more fairly judge (and act with self-confidence) when service providers are slow to act in accordance with their duties under the Equality Act (2010).

    Here on the forum; self-discovered / self-identified adults are equally welcome as those who have a diagnosis.

    Welcome to you.

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  • autistic79 said:
    that fight now needs to start all over again

    Unfortunately, I had a very similar horror show experience - I am so very sorry to hear that you were another person to have walked that path too.  The difference between my first and second assessment experiences was quite frankly summarised as the difference between "abuse" versus "care".

    My (eventual) diagnosis was received as an adult, very late (in my late 50's) ...with me being the least-surprised person to hear the second set of feedback points.

    I believe putting ourselves, as later adults, through the assessment process can often be very demanding and disruptive.  However, I am glad that I persevered.  It has helped me to learn a lot and begin to apply those learning points. 

    It has also helped me to more fairly judge (and act with self-confidence) when service providers are slow to act in accordance with their duties under the Equality Act (2010).

    Here on the forum; self-discovered / self-identified adults are equally welcome as those who have a diagnosis.

    Welcome to you.

Children
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