Newly Diagnosed - Day 3 - Feeling lonely

Hi all,

I was diagnosed with ASD at 39, on Sunday. My dad has psychosis and brother has an undiagnosed condition. Already there is a lot going on in our small family.

My best friend supported me and even sat through part one of my ASD assessment. He has provided support, but I’m not sure if I should disclose it, to my sisters and my mom, as I don’t want to seem, like a burden or for them to see me any differently or less than. Do you think I should share it? although, I have good friend support. When I was getting overwhelmed with noise, I was thinking I wish I could tell them, sometimes I need to isolate to recover.

Then it suddenly hit me, I was feeling lonely, even when surrounded by family.

Parents
  • Being amongst other people you can't relate to, or feel different from, is more lonely than being alone.

    It is why they say people feel lonely in crowds.

    I always feel lonely around other people.

    But being alone too much, I went almost a year hardly talking once almost entirely isolated and under pressure (not entirely by choice), has a different set of challenges. It is important to have at least one person you can speak to every other day ideally.

    Sharing your diagnosis will likely not have the effect you expect. They will quite possibly say they already guessed and it is no surprise, then move on and expect you to carry on as before. They might be interested, but it will quickly wane. It is important to you, but other people don't find it interesting enough to talk about it for months. The may just dismiss it or not take it too seriously. Only you can tell.

    I think I'd tell them. But you know your circumstances. You might want to think about what you want them to know or understand, as in general people won't guess what you mean. This is hard though as describing experiences and feeling is hard, even just talking about yourself is hard to start with. What you are probably after is sone sympathy and space. But mostly this journey is personal.

    You can get some temporary relief from the sense of isolation by sharing your thoughts on here. Having so done else say they feel the same is very helpful. Note that your thoughts and feelings will change though. Don't worry about it. It is part of re-establishing your identity.

  • That’s very true, I will take time to digest it and moving forward how I live my life, knowing my diagnosis, plus I still need the report yet.

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