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Newly Diagnosed - Day 3 - Feeling lonely

Marnee101

Hi all,

I was diagnosed with ASD at 39, on Sunday. My dad has psychosis and brother has an undiagnosed condition. Already there is a lot going on in our small family.

My best friend supported me and even sat through part one of my ASD assessment. He has provided support, but I’m not sure if I should disclose it, to my sisters and my mom, as I don’t want to seem, like a burden or for them to see me any differently or less than. Do you think I should share it? although, I have good friend support. When I was getting overwhelmed with noise, I was thinking I wish I could tell them, sometimes I need to isolate to recover.

Then it suddenly hit me, I was feeling lonely, even when surrounded by family.

Parents

  • I’m sorry you feel so lonely. Cinnabar gives good advice below, I have nothing new to add to that . The word autism means different things to the general public and often wrong information. It’s hard to share with your family, even though I’m sure if you broke your arm you would tell them and they would be supportive. So I’m trying to say but very clumsily I get where you’re coming from. 

Reply

  • I’m sorry you feel so lonely. Cinnabar gives good advice below, I have nothing new to add to that . The word autism means different things to the general public and often wrong information. It’s hard to share with your family, even though I’m sure if you broke your arm you would tell them and they would be supportive. So I’m trying to say but very clumsily I get where you’re coming from. 

Children