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Daniella

I’ve just been directed to this website after being diagnosed with autism and honestly after an hour I just figured out how to post, which used maximum brain power and multiple cussing Relieved so imma make my whole question into one post so I don’t have to do this again, but with autism I find myself struggling with generally getting my frustrations heard without confusion, I can imagineSobhat’s not gonna change, I do write stuff tho if it’s important and then read it out or give it to them so at least all important points are made. I also find that I get irritated by clothes a lot recently due to current situations of being on paid suspension and many more things, I gather that’s just another thing I’ll have to build up on, any tips will be great, I was legit told there’s not anySobing medicine wise they can do I can only talk about what is up with other people alike and honestly, that seems like I’m back to square one but at least it’s documented I have autism Joy

Parents

  • Hi Daniella - congratulations on your diagnosis and welcome to the community!

    Following a diagnosis, it can be common for us to experience a lot of emotional dysregulation - I've linked to an article below about this. It's also common to feel more aware of our traits - like noticing how irritating your clothes are . This is all good information to have, because it enables us to better understand and accommodate ourselves - whether directly, or by asking others for support or adjustments. So please don't worry, both are normal!

    As for many others, my diagnosis turned out to be the start of a new journey of learning and adapting, rather than a conclusion with instant solutions.

    The NAS has a great set of articles focused on "after diagnosis", including one covering how you might feel during the subsequent days / weeks / months, and others covering the kinds of support that you can access. You might find them helpful as a starting point:

    NAS - How you might feel after a diagnosis - includes perspectives from other autistics

    NAS - Other advice covering post-diagnosis - including:

    • Talking about and disclosing your autism diagnosis
    • Emotional support for family members after a diagnosis
    • Formal support following an autism diagnosis
    • What can I do if formal support is not offered or is not enough

    There's also some information here about communication:

    NAS - Autism and communication

    Therapy (or counselling) is often recommended after a diagnosis, as a follow up action for your GP to arrange. If you prefer, depending on where you are in the UK, you may instead be able to self refer for talking therapy on the NHS. 

    Before arranging it, you might find it helpful to borrow or buy this book, which includes discussion of various types of therapy and counselling, together with advice on choosing the right therapist or counsellor - all from an autistic person's viewpoint. Several of us here have found it very helpful:

    The Autistic Survival Guide to Therapy

    Finally, I'll just mention a couple of books that I and others have found helpful early on in our post-diagnosis journeys:

    Self-Care for Autistic People: 100+ Ways to Recharge, De-Stress, and Unmask!

    How to Be Autistic (free download currently available via this page)

  • in reply to Bunny

    Wow! Pray thank you this helps me get things started Smile

Reply Children
  • in reply to Daniella

    You're most welcome! Slight smile

    I'd also encourage you to try to pace yourself, and to be patient and kind with yourself. Whilst this journey might feel overwhelming at times, you're not alone.

    This forum is a great place to get advice and moral support, or to rant - as well as to share any of your own tips and advice, if and when you like. Or you can just lurk and read what others have written.

    There's no right way or wrong way to use this place (other than keeping within the rules, which are all very reasonable).