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Hello from Farnham. New to ASD

qcdj2009

Hi All,

My son, age 10 was officially diagnised yesterday with ASD, he also has ADHD and has been diagnosed with that for over 2 years now. He is on medication for it. He also has strict OCD routines and has just come back from 9 days at his Dad's where his hands are red raw, dry and bleeding. His behaviour at home is becoming increasingly more challenging and difficult for us as a family. At the moment I don't see how we are going to get out of it :-( My husband in particular is struggling. We also have 2 other children a duaghter ages 14 and a sone aged 4.

I'm hoping to get support, advice and a friendly ear on here to help us through this difficult time.

Parents

  • A CAF is a common assessment framework.  I was told by my SS department that to be assessed for early intervention, a CAF would have to be done.  Basically, its a meeting of all professionals involved with the family (and yourselves) to discuss issues and how to help.  Any professional involved can request one.  There is a big push at the moment for these because it can nip issues in the bud quickly and stop SS being involved however in the case of disability, its also a way into the early intervention system.  If your school do not know what it is, print them off some guidance (a quick google search will do it).

    As for respite, what they should do is find a 'buddy' that is suited to your son's needs and they would slowly build up a relationship with your son so that he's comfortable going out with them.  I know what you mean though because that's what I thought about my daughter however via the inclusion service, she had a tutor visit her at home and after a few weeks, she felt comfortable enough to go out with her (she wasn't in any education at the time because of her anxiety) and now actually goes to the PRU full time which in itself, is a miracle.  The tutor was perfect for her, understanding, maternal and there just for her.  They've built up a brilliant relationship.

    Good luck with the statement, I'm also in the process after two previous attempts.  Whatever happens, appeal if you do not get what you want.  I've learnt that the older they get, the issues with school get worse without a statement.

Reply

  • A CAF is a common assessment framework.  I was told by my SS department that to be assessed for early intervention, a CAF would have to be done.  Basically, its a meeting of all professionals involved with the family (and yourselves) to discuss issues and how to help.  Any professional involved can request one.  There is a big push at the moment for these because it can nip issues in the bud quickly and stop SS being involved however in the case of disability, its also a way into the early intervention system.  If your school do not know what it is, print them off some guidance (a quick google search will do it).

    As for respite, what they should do is find a 'buddy' that is suited to your son's needs and they would slowly build up a relationship with your son so that he's comfortable going out with them.  I know what you mean though because that's what I thought about my daughter however via the inclusion service, she had a tutor visit her at home and after a few weeks, she felt comfortable enough to go out with her (she wasn't in any education at the time because of her anxiety) and now actually goes to the PRU full time which in itself, is a miracle.  The tutor was perfect for her, understanding, maternal and there just for her.  They've built up a brilliant relationship.

    Good luck with the statement, I'm also in the process after two previous attempts.  Whatever happens, appeal if you do not get what you want.  I've learnt that the older they get, the issues with school get worse without a statement.

Children
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