• Replies 3 replies
  • Subscribers 68 subscribers
  • Views 644 views
  • Users 0 members are here
Options
Related
Hints and tips
  • To quote someone's message, first select/highlight the relevant text, and then use the Quote button that appears
  • To "mention" someone, type @ followed by the start of the forum name, and choose from the list; that person will get a notification of being mentioned

Hello from Farnham. New to ASD

qcdj2009

Hi All,

My son, age 10 was officially diagnised yesterday with ASD, he also has ADHD and has been diagnosed with that for over 2 years now. He is on medication for it. He also has strict OCD routines and has just come back from 9 days at his Dad's where his hands are red raw, dry and bleeding. His behaviour at home is becoming increasingly more challenging and difficult for us as a family. At the moment I don't see how we are going to get out of it :-( My husband in particular is struggling. We also have 2 other children a duaghter ages 14 and a sone aged 4.

I'm hoping to get support, advice and a friendly ear on here to help us through this difficult time.

Parents

  • Hi

    Sorry to hear how difficult things are at the moment.  Did the person diagnosing give you any signposts towards help?  Mine put my name down on a parent group thing though 6 months later, I'm still waiting.  

    Personally, as this affects your whole family, I'd ask school or the GP to do a CAF to see if you can get early intervention help from Social Services.  I was looking at going down this route myself but realised we wouldn't quite qualify (I work in a children's social care department so asked there before going through the rigermorole of more meetings) but if you have other family members in the house that are affected, you are more likely to get help with some respite care etc.  That can actually be a few hours a week for someone to take your son off to do an activity he likes while you and the rest of the family have a break.

    Also, have you made a claim for DLA?  If not, do asap because this will also help.  I used my daughters to do things she likes such as horse riding and I bought things for the garden like a trampoline to help her calm down as well as the extra costs involved with her SPD and anxiety.

    Depending on where you live, there may be good support groups with a local group - there is a list on this site.

    Good luck.

Reply

  • Hi

    Sorry to hear how difficult things are at the moment.  Did the person diagnosing give you any signposts towards help?  Mine put my name down on a parent group thing though 6 months later, I'm still waiting.  

    Personally, as this affects your whole family, I'd ask school or the GP to do a CAF to see if you can get early intervention help from Social Services.  I was looking at going down this route myself but realised we wouldn't quite qualify (I work in a children's social care department so asked there before going through the rigermorole of more meetings) but if you have other family members in the house that are affected, you are more likely to get help with some respite care etc.  That can actually be a few hours a week for someone to take your son off to do an activity he likes while you and the rest of the family have a break.

    Also, have you made a claim for DLA?  If not, do asap because this will also help.  I used my daughters to do things she likes such as horse riding and I bought things for the garden like a trampoline to help her calm down as well as the extra costs involved with her SPD and anxiety.

    Depending on where you live, there may be good support groups with a local group - there is a list on this site.

    Good luck.

Children
No Data