Parent of Autistic child

Ho everyone 

                      Not sure what to say, My son is awaiting a diagnosis for Autism. He has just become self aware, he is lonely and he said 

     "I make new friends, then after a few days, there is a wall that gets bigger"

What he means is , he makes new friends then he doesnt see them again. 

He said he is lonely, and friendless. He is exceptionally close to both his sister and me. 

He said he doesn't know how to act or what to say, he is afraid to ask to join in with children, he is scared they'll say no. 

I am sure that watching paranorman  yesterday, triggered something inside. He was upset and trying not to cry. 

As a parent, this is the most heartbreaking thing I have ever heard him say. He is 12.  There are a lot of changes going on.

Thank you for reading. I really appreciate it. 

Parents
  • I just wanted to say, Thank you so so much, from the bottom of my heart and soul. Genuinely I mean that. All I can do is support him and try to be as tactful as possible with  regard to said "friendships". Currently we are at Jump City trampoline park, where there is a Jump and Jam chrostmas session (Jam as in music not the stuff we eat), please don't  think I am trying t9 be sarcastic, I really am not. I know some people will take me literally and I don't want to cause confusion. He is going up and down in an almost straight line, from trampoline to trampoline. Ignoring music and lights. Just running and semi bouncing by himself. I guess as difficult as it is for him to navigate the world  as it is, it is also so soo difficult as a parent. I really want to wrap him up in cotton wool (metaphorically speaking) and protect him from all that is wrong. Thank you, it is so very much  appreciated , knowing as a family, we aren't alone.

    When you're  up until almost 3am sobbing your eyes out, because there isn't a solution. No map to navigate. We're just trying to find what,works. So far we have been waiting almost 6 years for a diagnosis, even though I was told when he was 3 there was something different. Also, I know when he was 18 months old. I just knew. After 6 other children, I know something was different with  number 7. He truly is my whole world. 

    Please know, I feel for all neurodiverse adults and children. 

  • You are caring parent and it's very important for your children. My mom also confirmed there was always something different about me, but the only thing she done was pretending and covering up so others wouldn't find out and even when they told her, she always answered, no it's just me, I'm just like this etc. 

    I remember,  when I was around 20, my step dad told me, that I finally have to find friends and gave a recipe for finding friends: I had to get interested with cosmetics and fashion. I was happy first that I would finally find friends, that I got an instruction how to do it and I took it as a promise- if I get busy with these things, I will finally make friends.  But it didn't work, I only wasted my time and energy and suffered with sensory issues with the smelly cosmetics,  including most of the fragrance,  with jewellery annoying me terribly and I finally dropped it. And then I wanted to go back to my big love (special interest) that was Russian.  But couldn't, felt broken, empty and lied to. I was supposed to find friends,  but didn't. So it caused me a big frustration.  Your son us waiting long, is there any option for Right to choose to wait few months instead of years? The sooner he receives help, the better. Here I just shared some of my story, I myself can't advise anything.  I wish with my whole heart,  that next generations of ND people get better understood,  supported and don't suffer so much.

Reply
  • You are caring parent and it's very important for your children. My mom also confirmed there was always something different about me, but the only thing she done was pretending and covering up so others wouldn't find out and even when they told her, she always answered, no it's just me, I'm just like this etc. 

    I remember,  when I was around 20, my step dad told me, that I finally have to find friends and gave a recipe for finding friends: I had to get interested with cosmetics and fashion. I was happy first that I would finally find friends, that I got an instruction how to do it and I took it as a promise- if I get busy with these things, I will finally make friends.  But it didn't work, I only wasted my time and energy and suffered with sensory issues with the smelly cosmetics,  including most of the fragrance,  with jewellery annoying me terribly and I finally dropped it. And then I wanted to go back to my big love (special interest) that was Russian.  But couldn't, felt broken, empty and lied to. I was supposed to find friends,  but didn't. So it caused me a big frustration.  Your son us waiting long, is there any option for Right to choose to wait few months instead of years? The sooner he receives help, the better. Here I just shared some of my story, I myself can't advise anything.  I wish with my whole heart,  that next generations of ND people get better understood,  supported and don't suffer so much.

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