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Newly diagnosed and now feel more lost!

DanFee

Hi all, 

Not sure if this is the right place to post, the psychiatrist recommended I join here. I am 34 and newly diagnosed with Autism level 1 (new being lunchtime today!) I am sat at work and cannot focus, I felt this would give me some clarify and some relief, but feeling more lost than I was trying to find answers. 

I keep getting a feeling that, maybe they got it wrong and I don't really have it, it fits, in so many ways it explains a lot but cannot help my brain telling me that maybe I answered wrong and got the diagnosis, even though I just answered truthfully. 

But my question is, what happens after? they have diagnosed me and will write a report and that is it, so although I now have an answer as to why I feel and think in a certain way, but no way to help myself lol

anyone felt the same after diagnosis? I mask a lot and it is exhausting, I just want to be able to be myself and I don't know how 

thank you for reading! :) 

Parents

  • It might be different for adults, but after nearly 4 years we got a 1.5 page letter (from a paediatrician we only met 3 times) confirming the ASD diagnosis for my 17 year old and signposting to a book and this website. We are now discharged from the NHS ND pathway; lost is an understatement! My child doesn’t want to ask for help at college so we really don’t know what will happen next

  • in reply to Hawthorn

    This has been similar for my daughter, after years she just got a letter and diagnosis at 16, then discharged with no follow up support or any guidance, and she really struggles to ask for any support other than from me! From what I can tell adults services wrong be much different,  she said she will do my report and then discharge it really is so hard 

  • in reply to DanFee

    It is so hard, All the support groups seem to be for families with nonverbal young children. I’ve found my own way over the years but my child won’t even ask me for help. It hurts so much seeing them shutting down more every year and we can’t do anything to help. 

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