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Newly diagnosed and now feel more lost!

DanFee

Hi all, 

Not sure if this is the right place to post, the psychiatrist recommended I join here. I am 34 and newly diagnosed with Autism level 1 (new being lunchtime today!) I am sat at work and cannot focus, I felt this would give me some clarify and some relief, but feeling more lost than I was trying to find answers. 

I keep getting a feeling that, maybe they got it wrong and I don't really have it, it fits, in so many ways it explains a lot but cannot help my brain telling me that maybe I answered wrong and got the diagnosis, even though I just answered truthfully. 

But my question is, what happens after? they have diagnosed me and will write a report and that is it, so although I now have an answer as to why I feel and think in a certain way, but no way to help myself lol

anyone felt the same after diagnosis? I mask a lot and it is exhausting, I just want to be able to be myself and I don't know how 

thank you for reading! :) 

Parents

  • It might be different for adults, but after nearly 4 years we got a 1.5 page letter (from a paediatrician we only met 3 times) confirming the ASD diagnosis for my 17 year old and signposting to a book and this website. We are now discharged from the NHS ND pathway; lost is an understatement! My child doesn’t want to ask for help at college so we really don’t know what will happen next

  • in reply to Hawthorn

    This has been similar for my daughter, after years she just got a letter and diagnosis at 16, then discharged with no follow up support or any guidance, and she really struggles to ask for any support other than from me! From what I can tell adults services wrong be much different,  she said she will do my report and then discharge it really is so hard 

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  • in reply to Hawthorn

    This has been similar for my daughter, after years she just got a letter and diagnosis at 16, then discharged with no follow up support or any guidance, and she really struggles to ask for any support other than from me! From what I can tell adults services wrong be much different,  she said she will do my report and then discharge it really is so hard 

Children