Aspie son age 5 - ipswich - feeling a bit lonely

Hi Tina,

That sounds really good. I have never heard of it and am intersted in some more information or a web page if you have it please? It would be good to meet up with people in similar circumstances.

Chrissy x

Hi Crissy

i have started going to Let's Do It! Family autism group. They go to Goals in Ipswich for a kick around once a week and sometimes trampolining. They also go to Bears Bowling every other week. It's for anyone on the spectrum, diagnosed or not, including anyone else in the family. it's great for sharing experiences. My son is not the youngest. Want to come along and/or meet up with us for a chat/play at the park? 

Tina x

Hi,

I live in Ipswich and recently learned that my 4 year old son has Aspergers.

He has not officially been diagnosed as yet but is on a waiting list to see a paediatrician but all other health care proffessionals seem to thing this is what he has.

The not understanding certain things, repetativesness and hand flapping to name a few. My son does have a very small circle of friends but is not close to any of the children as he is not able to communicate with them very well and it is tiring to explain why he does what he does constantly to people so I am becoming more and more reluctant to venture out. I would like to be in contact with someone in the same situation as any support groups in the area seem to be aimed at older children.

Thank you for the replies! I know I'm not on my own but am finding it daunting dealing with one thing after another. Guess I'd better get used to it! I'm the sort of person that likes to deal with something and tick it off the list but you can't do that with an aspie child. What worries me most is that school seem to raise a lot of issues but back down when challeneged. It's like they don't want to acknowledge his diagnosis. Do things get worse as your children get older? X

Hi byronsmummy,

there are a lot of parents in a similar situation to you. Myself included. I have a near 6 year old who is on the spectrum. There are plenty of groups on Facebook and of course there is here also. I would be happy to chat to you on either if you would like to.

Hi. Me and my son are both aspies age 51 and 19 respectively. My son was diagnosed at age 9 and me at 40. I would like to just say that it can be abit like the blind leading the blind but on the other hand me and my son have amazing times that only aspies could share. Life will always be a struggle for you and your son just as any parent will tell you but I think what ive learnt is that what I worry about for my son is not what he worries about and ive learnt to let him dictate to a certain degree how he wants his life to be. I have my own issues aswell and i find that i can sometimes explain to my son why he might feel a certain way but also show him that its sometimes good to feel the fear and do it anyway. Everyone has a differet journey and you will find your own coping strategies as you go along. Please be patient with yourself, you will find your own path.

Hi

As a mum I know how isolating and sad it can be when your child is excluded from play dates and parties.  My son's, now in their late teens tell me they were actually happy not to go to parties, as the few they did go to were hell for them and they would rather have not had that experience, and this may be the case with your child, so don't feel he is missing out.

Play dates were always kept short, we found the max time was 90 mins, for some reason any longer than that resulted in the children falling out with each other.  

Are  there activities that he will do where he can meet like minded children? 

Sometimes other parents are reluctant to send or invite your child over because they are not sure how to manage a child with autism and are worried about doing or saying the wrong thing.  We tended to meet up at parks where the children could play next to each other rather than with each other, which worked quite well.  

I wish I could say things get easier, but I have found that there is always another hurdle to deal with that you hadn't expected and so it goes on.  

Finally, make time for yourself.  It can be both  exhausting and extremely rewarding looking after a child with ASC, so you need to make sure you are in a good place and have the energy to deal with the many issues that lie ahead.

Take care.

Hello Byronsmummy08,

Welcome! I hope you are well. Sometimes it takes a while before other members see and reply to your post :) 

In the meantime, you can join other discussions and comment or ask questions about specific issues. 

Have a lovely weekend.

Best,

Kalliopi Moderator

Ah well, will talk to myself, lol!