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About time I did this....hello!

Gingernutty

Hi all

I have a 9 year old daughter with Aspergers, diagnosed 4 years ago, but until now, I have not taken advantage of any groups or help. Maybe i was in denial, i dont know, but we were coping.

This last 9 months has been hell! Since October 2013, my daughter has suddenly become very anxious about attending school and leaving me and is on the verge of being a school refuser. She has no real friends to speak of, she says school is getting harder and that her head is always full of worry and she cannot think of good things. She is in mainstream school and does not get any individual support. She also has taken a dislike to her teacher & teaching assistant as she says they shout and tell her off. She does struggle to understand tone of voice and facial expressions which does not help.

The school SENco has been great, but things have been very slow and nothing is going to be resolved before she goes in to year 5. Our GP put a referral in to CAMHS and they saw her last week,  but they cannot help her as she has an ASD diagnosis and apparently needs to see a paediatrician instead. We are also desperately trying to get an Educational Psychologists Assessment to see if she is in the right environment for her education or if she needs more specialised help. This is proving more tricky though and unlikely before the end of 2014.

Anyway, this is me, hoping to be able to communicate a little with people who understand.

Parents

  • Hello  :)

    First I want to say congrats on making a move to get some suport.

    I'm a 27 year old female with Asperger's who was also diagnosed about 4 years ago.  It can be difficult to get support that you need but whatever happens you have to stick at it.  I've had psychiatrists all my life but when it came to the Asperger's diagnosis it was obvious I needed more support.  I was told there were no support for adults on the spectrum in my area so I gave up and tried to cope with it on my own, which ended up with me on anti-anxiety drugs and CBT courses to try and cope with the amount of anxiety that had built up in my system.  I've moved cities and I've now started the process again to get psychologist help.  This was back in January.  It's now June and they are still struggling to get some paperwork from my previous doctor's surgery and then I'm on a waiting list of any up to and over a year.  During this time though my psychiatrist is trying to help me and tells me I have to keep in touch.

    I suppose with being diagnosed later I was in denial myself.  I (exhaustingly) manage to get through everyday.  So, because of my ability to put a brave face on doctors see that you appear to be coping.  but truth is, I'm not.  I'm just trying to get through everyday at the moment.  So, there isn't anything stopping you from going to your GP again and discussing your concerns with them to see if there is any psychiatric support you can get until the education side is sorted (to be honest, if it was me in that educational job, I'd be helping you out now and not the end of 2014).  i don't know what you may have tried already so sorry if I'm duplicating.

    You don't have to cope with this alone, so feel free to discuss anything here.  if we can't help, then we can listen.

Reply

  • Hello  :)

    First I want to say congrats on making a move to get some suport.

    I'm a 27 year old female with Asperger's who was also diagnosed about 4 years ago.  It can be difficult to get support that you need but whatever happens you have to stick at it.  I've had psychiatrists all my life but when it came to the Asperger's diagnosis it was obvious I needed more support.  I was told there were no support for adults on the spectrum in my area so I gave up and tried to cope with it on my own, which ended up with me on anti-anxiety drugs and CBT courses to try and cope with the amount of anxiety that had built up in my system.  I've moved cities and I've now started the process again to get psychologist help.  This was back in January.  It's now June and they are still struggling to get some paperwork from my previous doctor's surgery and then I'm on a waiting list of any up to and over a year.  During this time though my psychiatrist is trying to help me and tells me I have to keep in touch.

    I suppose with being diagnosed later I was in denial myself.  I (exhaustingly) manage to get through everyday.  So, because of my ability to put a brave face on doctors see that you appear to be coping.  but truth is, I'm not.  I'm just trying to get through everyday at the moment.  So, there isn't anything stopping you from going to your GP again and discussing your concerns with them to see if there is any psychiatric support you can get until the education side is sorted (to be honest, if it was me in that educational job, I'd be helping you out now and not the end of 2014).  i don't know what you may have tried already so sorry if I'm duplicating.

    You don't have to cope with this alone, so feel free to discuss anything here.  if we can't help, then we can listen.

Children
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