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Hi! New and need advice!

Jengsy

Hi everyone :)

firstly, I'd like to say that this website has been the most amazingly helpful resource I've found, EVER!! I suppose I've never needed quite so much info on any topic quite so quickly in my life, but it's been awesome so far...and I wonder if anyone can help me with something I'm having trouble with.

A bit of background info before I quiz...my partner's son has recently started school and is in the process of being assesed for Autism/Aspergers. 

It's become more apparent since starting to research this ourselves that his dad also has or had in the past a lot of traits (he had a very difficult childhood, broken education due to being labelled a "naughty" child), also, About a year ago his cousin who is a year older was assesed and found to have Aspergers, and while we don't want to jump ahead of the experts we're pretty sure what the result of the assessment is going to be.

The problem I'm having is that my partner is also severely Dyslexic, which means that I'm the one doing all if the research and gaining an understanding of what may be going on with his son, but I'm finding it hard to pass this all on to him...does anyone know of any videos, audio books etc that we can watch/llisten to together that can explain some of the difficulties we're having?

for example, today little man complained that the jumper he was wearing was "hurting" him...he often complains of clothing/socks being too tight or "hurting" and preferring polo necks to round necks etc, but he'd just has a bit of an average 5yr old meltdown so wasnt in dad's good books to being with, and the small complaint escalated quickly into a major fall out, with me desperately wanting to step in and explain that it may be a sensory issue, but also not wanting to step on dad's authoritive feet, and getting a word in edge ways would have been impossible without escalating the situation further...desperately frustrating!!

I could really do with a super informative video about challenging behaviour and potential difficulties...I don't want solutions, just to give dad a better understanding, both of himself and his son, can anyone help/advise? 

  • Thank you everybody for your posts!

    Coogybear - it never occurred to me to find something to read for him, just had a proper moment of "why didn't I think of that?!?" Enlightenment!!

    We'll look into that later, could well be the solution we've been looking for to solve a lot more than just the aspergers info problem!  Thank you :) xx

  • Hello again,

    Just found one more link, that may be helpful.

    www.youtube.com/watch

    Regards

    Coogybear XX

  • Hi Jengsy,

       I'm affraid i don't know of any videos about sensory issues on thir own, related to ASD, but I have recently seen a video of a lady (Sarah Hendrix) who runs seminars for teachers on behalf of the NAS, who does a very good job explaining what it can be like to be on the spectrum and how Teachers can support students. Your friend with Dyslexia may of course be able to access some of the written info using assistive software.

    www.youtube.com/watch

    My son is profoundly dyslexic and uses Claroread to access written info, E-mails, PDF's etc. It's been the key to unlock the door for him. Claroread is available in a trial, so you can test it first before you purchase it. You highlight the text and it reads back to you at the Speed and in the voice you feel most comfortable with. It even has regional accents!

    It is expensive, but my son used his DLA to pay for it. The best money he's spent in a long time in support of his disability! You need a high spec computer to run it, but he has a dedicated one at College and at home and it's opened doors for him that have previously been closed tight. Your friend may find this extremely useful.

    www.clarosoftware.com/product_info.php

    Another good one is Dragon Natuarally Speaking 12. This allows him to write his own text. Given my own sons co-ordination difficulties this is also invaluable (His writing is illegable) and has also greatly lifted his ability to be able to produce significant levels of text, just by speaking into the headset.

    www.software4students.co.uk/products

    Hope some of these links are helpful

    Kind Regards,

    Coogybear XX

  • Hi Jengsy

    As part of the assessment, my daughter was referred to OT for her severe sensory issues (she'd wear polo necks all year round btw) and although the OT found it difficult to help with some of her more serious issues, they did send me on a little training session with a few other parents.  That had videos and some games.  It was invaluable.  

    Meltdowns are very hard to deal with.  Before my daughter was diagnosed earlier this year, I was living with my sister who's had years of working with people with various difficulties including autism.  Even she found the meltdowns difficult to deal with.

  • Former Member
    Former Member

    It sounds like you have your hands full with your partner and son. Sorry but I don't have any recommendations for videos etc.

    I can offer some reassurance that a diagnosis can be good news! If they have someone who can understand their world then they can begin to understand how to deal with"normal" people.

    Talk to the teachers and see what support they can introduce you to. Being able to ask for help is the first step - well done and I wish you success with your new mission.

    The meltdown sounds like an Asperger meltdown. You partner's response sounds like an Asperger's response. An Aspie is not likely to have much skill in dealing with children and an Aspie child will not respond well to discipline. I'm speaking as someone who was an Aspie child and was then an undiagnosed Aspie parent!