Recently diagnosed and struggling

I'm new here. I was diagnosed autistic & ADHD earlier this year. It’s something I’ve suspected for years but it took a long time to navigate actually being assessed. 

I really thought the diagnosis would bring relief, clarity and validation. I think I expected to feel seen but instead I just feel lost. I guess I’m still processing it all. It's a complete shift in how I see myself and my past and in how I'm going to live my future and that's a lot to deal with. It’s brought up a lot of grief.

I wasn't offered any meaningful support afterwards so i suppose I just feel very alone in navigating it all. The people in my life don’t seem to understand how life changing this diagnosis is for me so I can't really talk to them much about it.  And when I reached out to my doctor I was basically told to either pay for private therapy or try making friends with other autistic people. So I don't really feel like I've had any guidance or resources. I've just been left to somehow figure it out on my own. 

I’m struggling with loneliness. I don’t know how to make friends in a way that feels real and sustainable. Some days I can barely get out of bed. I can’t work right now. I feel overwhelmed by everything. I'm anxious that I'll never find the support or stability I need to build a life where I can function and connect with others.

I'm nearing 30 now and I see all my peers settling into careers and having solid supportive friendship circles. I thought by this age I’d have it a little more figured out but instead I feel stuck and like everyone is moving too fast for me to keep up. 

I guess that’s why I’m here. I’m looking for reassurance that I’m not the only one feeling this way. I want to find a sense of community and somewhere to be honest about this journey as I try to unmask and figure out how to exist in the world as I am.

I know this is a bit rambly, but if anyone has any advice or can resonate in any way it'd be great to hear from you. 

Parents
  • Hi  

    I just wanted to let you know what you have said completely resonates with me, I got my diagnosis in December 2024 (Im 41) and my experience has been very similar no after support and trying to work out where I go from here with a truck load of feelings and emotions.

    What I would say is I've found the people on this forum are super kind and supportive and want to support each other.

    I struggle to make friends (Ive been friendless for the last 2 years) and get what its like to be lonely, I keep looking for autism friendly groups but haven't found anything local yet but Ill keep trying. I managed to register at a local womens centre this morning but the effort has completely taken all my spoons for today.

    Im trying to take 1 day at a time and finally trying to put myself first after 40 years of ignoring my needs, I've found that my ASD diagnosis has helped me to recognise my sensory differences and have a level of compassion for myself that I didn't before. 

    Ive been reading lots of books I've found "Self Care for Autistic People by Dr Neff "  very helpful to give me tips on what might work for me and help to rebuild my energy.

    Please know you aren't alone and try not to worry about other people moving at different speeds in life just give yourself time.

Reply
  • Hi  

    I just wanted to let you know what you have said completely resonates with me, I got my diagnosis in December 2024 (Im 41) and my experience has been very similar no after support and trying to work out where I go from here with a truck load of feelings and emotions.

    What I would say is I've found the people on this forum are super kind and supportive and want to support each other.

    I struggle to make friends (Ive been friendless for the last 2 years) and get what its like to be lonely, I keep looking for autism friendly groups but haven't found anything local yet but Ill keep trying. I managed to register at a local womens centre this morning but the effort has completely taken all my spoons for today.

    Im trying to take 1 day at a time and finally trying to put myself first after 40 years of ignoring my needs, I've found that my ASD diagnosis has helped me to recognise my sensory differences and have a level of compassion for myself that I didn't before. 

    Ive been reading lots of books I've found "Self Care for Autistic People by Dr Neff "  very helpful to give me tips on what might work for me and help to rebuild my energy.

    Please know you aren't alone and try not to worry about other people moving at different speeds in life just give yourself time.

Children
  • I'm glad to have found this forum. It already feels like a safe and supportive place. It's tough to navigate this without proffesional support so at least there is community here. 

    Well done for managing to register at the women's centre, it sounds like that took a lot for you to do. 

    I'll add the book to my list and hopefully get round to it (I find with the addition of ADHD too it's really difficult to focus on reading but I'm hopeful medication may eventually help that)