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Diagnosed at 47, wish I didn’t know

Nexus-7

Hi everyone, I’m a 47 year old woman who was diagnosed with autism and adhd through right to choose around 5 months ago.

I feel like I wish I didn’t know I was autistic. It was a huge shock to me. I was only diagnosed because my GP suggested I might have ADHD and part of the assessment process included autism tests. 

No support was given after diagnosis. They said they’d send info but I haven’t even received my report yet. 

Ever since I’ve been diagnosed I’ve felt extremely paranoid about any interactions with other people. I’m really struggling. I can’t seem to find anywhere to get support. Does anyone know of support groups for late diagnosed people? I live in east London. Thank you. 

Parents

  • Most late diagnosed people find little or no organised support is available. This is one of the reasons sites like this exist. When you can interact with people whose experiences overlap with your own, things can feel easier and less daunting. All autistic people are autistic from birth, so you have always been autistic. You are exactly the same person you were before being diagnosed. The diagnosis may help in giving you reasons for the way you are. For me, diagnosed at 59, it allowed me to forgive myself for past shortcomings and failings.

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  • Most late diagnosed people find little or no organised support is available. This is one of the reasons sites like this exist. When you can interact with people whose experiences overlap with your own, things can feel easier and less daunting. All autistic people are autistic from birth, so you have always been autistic. You are exactly the same person you were before being diagnosed. The diagnosis may help in giving you reasons for the way you are. For me, diagnosed at 59, it allowed me to forgive myself for past shortcomings and failings.

Children