Hi

Hi I'm a F28 diagnosed with ASD. I was diagnosed this year, on Feb 4th on my birthday, and it's a great feeling because I finally have to validation I've kind of been searching for my whole life so far. I'm a bit of a Star Wars nerd lol, It's my special interest and I love to learn new things too, I've been using an app on my phone recently to teach me how to speak Italian.

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  • Hi Patrytrooper ^^ Welcome!

    Star Wars is amazing I love all of the movies. Which is your favourite, do you have a favourite character? I love Revenge of the Sith - it's the first one I saw and was also my favourite Lego Star Wars video game story to play through. Have you played the games? If not I seriously recommend them. They are a lot of fun :)

  • Yes I am big fan but mainly the original trilogy. I lido like the Mandolrian and Andor from the latest stuff. Darth Vader is my icon, always been a fan of the Vader. Still got some star wars figures and spacecraft etc

  • Now being an air traffic controller would be wonderful although intense - all that responsibility on screens in front of you! I am not so much knowledgeable of types of aircraft, more in flight itself. I used to fly light aircraft, Cessna 150/152 and Piper Cherokee PA28.

    I definitely share your love of Ancient Egypt, especially from an Art perspective, but my real passion lies in Neolithic and Iron Age material culture of the Levant. 

  • My favourite games are Sims 4, Fallout 4, Assassins creed Odyssey, BioShock and Hogwarts Legacy.

    I've read most of Stephen King's books during my lifetime, but haven't read anything by him for some years now. My favourites were From A Buick 8, Under The Dome, The Mr Mercedes trilogy, and the Dark Tower series.

  • Hiya! Thank you so much!

    I actually have a bit of an interest in aircraft dating back to aircraft used in the World Wars. I find them oddly interesting and I would love to be communicating with them sort of like ‘Flight 16, take a southern heading and descend to 20,000’. That would be a fun job, minus the amount of pressure they are probably under when supervising flights all day.

    Yeah we definitely have a similar interest there!

    I love your interests. I find anything to do with archaeology fascinating. Uncovering the past tells so much about how life was back then and it also shows how much we have advanced as a species, both physically and technologically. I love watching videos about archaeology, especially regarding Ancient Egypt *special interest*.

    Nice to meet you!!

  • Hi Lotus, thank you!

    What books and games do you like? I like reading too, and gaming. I just started reading Stephen Kings Fairytale book and I am really enjoying it so far.

    I love Star Wars. I watched them when I was a kid and I haven’t really looked back since. I own quite a lot of Star Wars memorabilia, books, dvds, Funk Pops… Even the VHS’s which is crazy because I don’t own a VHS player lol.

    If it’s Star Wars then I love it and have to add it to my collection.

    When you get round to watching the other Star Wars movies I hope you enjoy them.

  • Hello Partytrooper and welcome to the forum. Congratulations on your diagnosis! 

    When I saw your post the F28 popped out at me and I thought you were an aircraft. I am not a Star Wars fan, but it does mean we share flight related interests. 

    i am female, in my 60s, and enjoy researching archaeological related resources. I have interests in canine behaviour and keeping up to date with current affairs.

  • Hi and welcome to the community. I'm a woman in my sixties and I enjoy reading and playing video games. I like the original star wars trilogy but not the prequel one. I've only watched the first one of the sequel series but I enjoyed it, I will get round to seeing the other two sometime!

    I hope you enjoy chatting with us.

  • Hi, thank you, glad I stumbled across this website. Do you like Star Wars too? I have been a diehard fan of the whole franchise since I was about 8. Love it so much, the perfect escape.

    Love the stormtrooper avatar btw

    Thanks! It took a long time but I finally got one that looked like a partying stormtrooper Laughing

  • Hi Partytrooper, welcome to the community and great to have a fellow Star Wars fan on board Grinning. Love the stormtrooper avatar btw

  • Me too. Medical appointments just frazzle me and everything becomes a lot more difficult. The buildings are usually busy, noisy and running very hot - it's just one big recipe for a meltdown for me. Processing info on top of that is almost impossible.

    I like your idea of having a notebook for health-related things. I'll start doing this now, must be an absolute lifesaver for you. I know it definitely would be for me. My problem will be remembering to take it with me. Though I'm only 28 my memory is shocking!

    Writing questions down beforehand is a good plan. I used to do it by writing on my palms but because I got so worked up and sweated, the ink ran and became unreadable before I actually made it in to the appointment with the doctor Laughing I've never been up top for thinking on these things! I think writing in a notebook will work out better than writing om my palm did.

  • I'm very glad to be of help!

    my GP probably did tell me I just struggle to take in loads of info at once.

    I'm the same in any kind of medical appointment - and my mind often also goes completely blank, even when they're only asking me very simple questions.

    In case it's of any help by way of a tip, I now have a separate (paper) notebook for all things health-related.

    Whether it's a phone, video, or face-to-face appointment, I use it to prepare my questions in advance, and then also to write down all of the important things that they tell me.

    I've learned not to be shy about telling them this (especially in phone appointments, where they can't see what I'm up to), so that they can allow extra time and speak more slowly, which allows me to keep up. Everyone's always been very kind and accommodating about it.

  • Ahh sweet thanks for telling me I wasn't sure on the waiting times for this, my GP probably did tell me I just struggle to take in loads of info at once. I ought to hear pretty soon though as it is almost six weeks or very nearly.

    Thanks for your help. Seriously it's so nice of you and it's been such a help for me today.

  • You're most welcome! Blush

    The waiting times for the NHS's talking therapies can be quite short (with over 90% of referrals accessing therapy within six weeks, according to recent data), so hopefully you'll here from them soon. Fingers crossed

    If you don't get the help that you need from your GP in due course, the article titled "Formal support following an autism diagnosis" (via the link in my previous reply) includes a template letter that you can send to them to request a support plan per the national guidelines.

  • Hello Bunny. OMG! Thank you SM!!

    Thank you for the articles, so kind of you, they will be a lot of help. It kind of feels like I’m left in the dark now to be honest as I got my diagnosis and it was like bye then… I have been sent a referral for a therapist so hopefully that won’t be too long waiting. I waited almost six years for my diagnosis, I’m hoping it won’t be as long for the therapy.

    I'll check my library for the book, if not I'll buy it for myself. I already have read two books on autism/neurodivergency and both are really helpful to me.

    Thanks again x.

  • Congratulations on your diagnosis and welcome to the community!

    There are a lot of other late-diagnosed people here, so it's a great place to share your thoughts, connect with others, and/or just to pick up tips and learn by reading others' posts.

    The NAS has a great set of articles focused on "after diagnosis", including one covering how you might feel during the subsequent days / weeks / months. You might find them of interest and/or helpful:

    NAS - How you might feel after a diagnosis

    NAS - Other advice covering post-diagnosis including:

    • Talking about and disclosing your autism diagnosis
    • Emotional support for family members after a diagnosis
    • Formal support following an autism diagnosis
    • What can I do if formal support is not offered or is not enough

    Therapy (or counselling) is often recommended after a diagnosis, as a follow up action for your GP to arrange. In anticipation of that, you might find it helpful to borrow or buy this book, which includes discussion of various types of therapy and counselling, together with advice on choosing the right therapist or counsellor - all from an autistic person's viewpoint. Several of us here have found it very helpful, including me:

    The Autistic Survival Guide to Therapy