Hi, newly diagnosed, no idea what to do next

Over five years of waiting and I finally have confirmed that I’m autistic. It was mostly obvious to be, the signs were more than visible, though I still had that ‘what if I’m not and am just an imposter’ thought process whirring round my head more than I wanted. Now I have been told by a professional I feel I can relax a little. I have room to breathe again and take this all in.

One thing I’ve read about that I seem to do a lot is that I’m masking when I do things like work and going in to town, this they say is my way of coping with outside pressures, but it’s not recommended and I should stop because it’s unhealthy. I don’t understand how to stop this though, it feels natural to me to do it and I don’t think I could not do it if I wanted to. I think I’ve been masking every day since I was at school. It explains why I’m so fatigued now though. Masking gets me through each day. I can't imagine going to work and not masking, how else would I pass off as the 'me' every one knows me as there.

It feels great knowing I have autism but it’s also left me feeling very alone and isolated. I have this knowledge of who I am now but I don’t know what to do with this knowledge or if anything even can be done.

I waited so long for this and now I finally have what I was waiting for and it’s very much like ‘what do I do now?’ and I don’t know the answer to that.

Parents
  • Hi and welcome to the community. I'm a woman in my sixties and retired.

    I see in your profile that you are a big music fan. I was also into music in a big way in my youth - taught myself to play guitar when I was at secondary school and in my early 30s I dabbled in composing and producing electronic music. I also like Roxy Music and was a big David Bowie fan.

    You also mentioned gaming. I enjoy playing video games on an Xbox - my favourites include Sims 4, Fallout 4, Assassins creed Odyssey, Hogwarts Legacy and BioShock.

    I also enjoy watching films and choose two or three to watch each week. I tried to start a Film Club on here, where I chose a film and started a thread about it, in the hope others would watch it too and we could all discuss it, but it hasn't been very successful. I'm thinking of changing it to a.weekly "Goggle Box" thread where people can write what they watched that week.

    Hope you enjoy chatting with us

  • Hi Lotus. Thank you, it’s so nice to meet you.

    It’s really cool that you taught yourself to play the guitar. What’s your fave song to play? I love the guitar, I love how many different sounds can come from just one instrument and just a couple of chords. My fave song to play on the guitar is Here Comes The Sun by The Beatles, it’s the first song I properly learned to play so it has that extra meaning to me. I love music, I couldn’t get through each day without music. That’s so cool you’ve also composed and produced music. I would love to do that but I have no idea how to do anything like that. lol.

    I get my love of Roxy Music and older music in general from my parents, they opened a record shop in the late 70s and it’s still going now, also sells cds now and after school I used to help them out there and they always play older music in there. It’s nice though because I have a love of old and new music. I love Bowie, so sad he’s gone now he was so unique. Bowie is my mums fave singer and I think she got to see him live in concert twice when she was younger.

    I play on Xbox too! I love the Sims 4 and the Assassins Creed games. I’m not very good at Assassins Creed, I lack the coordination sometimes but I enjoy them. Open world games are a lot of fun because you can take your time and explore the world, find hidden things and any extras that are in the game. That’s why I like the Lego games as well, there’s always a lot to do.

    When is your next Film Club film? I’m a big film buff and spend probably a little too much time watching films. Despite I’m not even 22 yet I have got an insanely large amount of films in my collection. lol. Next time you choose a film for your Film Club let me know and I will take part in it and get back to you on what I thought. A hobby of mine before has been writing reviews for films, the plot, special effects, the cast etc. I did it just for fun but only I got to discuss it, I had no one to chat with about it, so it would be cool to do that here with others who enjoy films.

    I’ve already enjoyed being here so much more than I thought I would. Earlier when I made this post I was so anxious, I don’t know why I was just anxious at the thought of posting, worried I might not ‘fit in’ but I already feel so myself here. It’s a feeling I’ve always wanted in person but haven’t found yet. It’s nice I have it here, I feel I don’t have to mask here.

Reply
  • Hi Lotus. Thank you, it’s so nice to meet you.

    It’s really cool that you taught yourself to play the guitar. What’s your fave song to play? I love the guitar, I love how many different sounds can come from just one instrument and just a couple of chords. My fave song to play on the guitar is Here Comes The Sun by The Beatles, it’s the first song I properly learned to play so it has that extra meaning to me. I love music, I couldn’t get through each day without music. That’s so cool you’ve also composed and produced music. I would love to do that but I have no idea how to do anything like that. lol.

    I get my love of Roxy Music and older music in general from my parents, they opened a record shop in the late 70s and it’s still going now, also sells cds now and after school I used to help them out there and they always play older music in there. It’s nice though because I have a love of old and new music. I love Bowie, so sad he’s gone now he was so unique. Bowie is my mums fave singer and I think she got to see him live in concert twice when she was younger.

    I play on Xbox too! I love the Sims 4 and the Assassins Creed games. I’m not very good at Assassins Creed, I lack the coordination sometimes but I enjoy them. Open world games are a lot of fun because you can take your time and explore the world, find hidden things and any extras that are in the game. That’s why I like the Lego games as well, there’s always a lot to do.

    When is your next Film Club film? I’m a big film buff and spend probably a little too much time watching films. Despite I’m not even 22 yet I have got an insanely large amount of films in my collection. lol. Next time you choose a film for your Film Club let me know and I will take part in it and get back to you on what I thought. A hobby of mine before has been writing reviews for films, the plot, special effects, the cast etc. I did it just for fun but only I got to discuss it, I had no one to chat with about it, so it would be cool to do that here with others who enjoy films.

    I’ve already enjoyed being here so much more than I thought I would. Earlier when I made this post I was so anxious, I don’t know why I was just anxious at the thought of posting, worried I might not ‘fit in’ but I already feel so myself here. It’s a feeling I’ve always wanted in person but haven’t found yet. It’s nice I have it here, I feel I don’t have to mask here.

Children
  • Nice to meet you too. I was interested to hear about your parents' record & CD shop. I also saw Bowie perform live, in 1978.

    I have also played two of the Lego games, the star wars & Harry Potter ones. But they gave me a painful arm and shoulder through continually pressing the X button! I prefer games where you use the triggers for combat.

    Thanks for your interest in my film club idea - I see you replied on that thread so I look forward to seeing a review from you.

    Glad to hear that you feel like you fit in here - welcome to the home of your neurokin!