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48, diagnosed yesterday, Well, didn’t expect to feel like this !

Gareth

Good morning all ! 

I was diagnosed 2 days ago with ASD ! Still awaiting my full NHS diagnosis report, but was told on the spot at the end of my first 3.5 appt.

How does everybody deal with this sudden complete overload of you now pulling your 48 years of life to pieces, it’s a nuts combo of emotions, relief, clarity, guilt, anger, resentment, sadness…..and just the overriding questions of what’s this now going to be like and how’s it going to change me and how the hell has nobody historically seen this lol ?

I know there’s no set way of processing this, everybody will be different, just curious to how others, particularly at my age range dealt with it in their first few days and weeks ?

Thanks for reading….

Parents

  • Hi Gareth.  Congrats on your diagnosis !. 

    Am mid 50s and diagnosed in Jan this year, but obviously still processing it, although not sure that will stop, although I perhaps have dropped the amount of time I'm allowing it to consume my mind.

    First few weeks and still - was about who and when I disclose, so some of my immediate family don't know yet and not sure that will change, we will see.   I bought some books prior to diagnosis and have dipped back in them a couple of times, and somehow they seem more relatable now the sections I've reread

    I have started CBT mainly focusing on my Anxiety and I finding that helpful: I feel a bit calmer generally but even this morning I woke up with it there.   That's been via my health insurance - so will see where I am when that ends, and may need to reach out to NHS talking therapies 

    I've been on a couple of zoom calls via a local Autism support group, so although not meeting face to face it's been good to meet others listen and ask, just like reaching out to others on this forum: here I found very helpful advice from those both newly diagnosed and also others with more lived experience of knowing.

    Work my line manager knows and HR, but other than that, I haven't disclosed to others.  I work from home mostly, so largely in control of my environment, although my boss is open to me letting them know what support/change I need (this is fairly informal at the mo) and they are aware of some problem areas, although my overall performance is no issue.  So will need to perhaps work on defining any adjustments that come up in the coming months - have not looked into "access to work" as no need for the moment - but may do if the need arises.  So this may or not be an area for you to look into.

    Anyways - wish you well over the coming weeks

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  • Hi Gareth.  Congrats on your diagnosis !. 

    Am mid 50s and diagnosed in Jan this year, but obviously still processing it, although not sure that will stop, although I perhaps have dropped the amount of time I'm allowing it to consume my mind.

    First few weeks and still - was about who and when I disclose, so some of my immediate family don't know yet and not sure that will change, we will see.   I bought some books prior to diagnosis and have dipped back in them a couple of times, and somehow they seem more relatable now the sections I've reread

    I have started CBT mainly focusing on my Anxiety and I finding that helpful: I feel a bit calmer generally but even this morning I woke up with it there.   That's been via my health insurance - so will see where I am when that ends, and may need to reach out to NHS talking therapies 

    I've been on a couple of zoom calls via a local Autism support group, so although not meeting face to face it's been good to meet others listen and ask, just like reaching out to others on this forum: here I found very helpful advice from those both newly diagnosed and also others with more lived experience of knowing.

    Work my line manager knows and HR, but other than that, I haven't disclosed to others.  I work from home mostly, so largely in control of my environment, although my boss is open to me letting them know what support/change I need (this is fairly informal at the mo) and they are aware of some problem areas, although my overall performance is no issue.  So will need to perhaps work on defining any adjustments that come up in the coming months - have not looked into "access to work" as no need for the moment - but may do if the need arises.  So this may or not be an area for you to look into.

    Anyways - wish you well over the coming weeks

Children
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