Diagnosed at last!

Most of my life I’ve been an outcast and labelled as ‘weird’ by most people I encountered and now I’ve finally been diagnosed with Autism! It took nearly five years but I made it to the finish line in the end. I feel like I’m wasting my life away a bit though but how I feel could be down to the Autism. I don’t really do much and it must look lazy because nearly everyone I know calls me lazy. Sadly it’s my own family but then they aren’t exactly understanding or supportive. They see autism more of an excuse.

I’ve been trying harder to do more, some days I’ve gone out for a short walk but the fatigue pulls me down, other days just getting out of bed is a challenge. Most of my time is spent reading and napping. I worked for a short time between 2012– 2022 but didn’t go in much, the anxiety floored me, the fatigue became unmanageable and to be honest it feels like I never got over it. At the time it didn’t make a lot of sense. I kept asking myself why I was being affected this and I had no idea, no answers surfaced, I was very much in the dark and felt alone in what I was going through. One of the girls I worked with noticed my lack of making eye contact and the way I repeatedly clapped my fingers against my hands three times like a drum beat. She said it looked like stimming and then I looked it up, heard of autism and went for a diagnosis. It was a long haul, and at times I felt like maybe I shouldn’t have gone for a diagnosis but I finally got my diagnosis last week and now I feel a bit more at ease with myself. Looking back at how I’ve been and what I’m like now it makes a lot more sense.

Before I felt strange like I didn’t fit in with people but now I see that my group is out there just I didn’t know where to find it before. Now I know about autism I can understand myself better and look at what I’m experiencing from a different view point. I think the fatigue might be burnout but I’m not sure exactly, just a wild guess based on my research. I’m going to try and slow down and be less anxious and see if that allows me to recover.

Sorry for the lengthy message. I’m still a bit in awe about my diagnosis and the sudden eye opening it’s presented me with. It’s just nice being able to talk about it all without people telling me I’m lazy and using it as an excuse.

Q.

Parents
  • Hi Quinn - congratulations on your diagnosis and welcome to the community!

    The relief that I felt was also enormous. But don't worry if you also get some negative feelings, too. It can be common for us - especially as late-diagnosed adults - to experience emotional dysregulation, which can include working through a phase where we experience confusion and/or (backward-focused) anger, frustration, grieving and more. So please don't worry if this also happens - it's normal! :)

    The NAS has a great set of articles focused on "after diagnosis", including one covering how you might feel during the subsequent days / weeks / months. You might find them of interest and/or helpful:

    NAS - How you might feel after a diagnosis

    NAS - Other advice covering post-diagnosis including:

    • Talking about and disclosing your autism diagnosis
    • Emotional support for family members after a diagnosis
    • Formal support following an autism diagnosis
    • What can I do if formal support is not offered or is not enough

    For now, I suggest allowing plenty of time for it all to sink in. For me, and many others here, my diagnosis turned out to be much more of the start of a new journey, rather than a conclusion, with lots of ready-made solutions for all of my various difficulties.  

    Therapy is often recommended after a diagnosis as a follow up action for your GP to arrange. You might find it helpful to borrow or buy this book, which includes discussion of various types of therapy and counselling, together with advice on choosing the right therapist or counsellor - all from an autistic person's viewpoint. Several of us here have found it very helpful, myself included:

    The Autistic Survival Guide to Therapy

Reply
  • Hi Quinn - congratulations on your diagnosis and welcome to the community!

    The relief that I felt was also enormous. But don't worry if you also get some negative feelings, too. It can be common for us - especially as late-diagnosed adults - to experience emotional dysregulation, which can include working through a phase where we experience confusion and/or (backward-focused) anger, frustration, grieving and more. So please don't worry if this also happens - it's normal! :)

    The NAS has a great set of articles focused on "after diagnosis", including one covering how you might feel during the subsequent days / weeks / months. You might find them of interest and/or helpful:

    NAS - How you might feel after a diagnosis

    NAS - Other advice covering post-diagnosis including:

    • Talking about and disclosing your autism diagnosis
    • Emotional support for family members after a diagnosis
    • Formal support following an autism diagnosis
    • What can I do if formal support is not offered or is not enough

    For now, I suggest allowing plenty of time for it all to sink in. For me, and many others here, my diagnosis turned out to be much more of the start of a new journey, rather than a conclusion, with lots of ready-made solutions for all of my various difficulties.  

    Therapy is often recommended after a diagnosis as a follow up action for your GP to arrange. You might find it helpful to borrow or buy this book, which includes discussion of various types of therapy and counselling, together with advice on choosing the right therapist or counsellor - all from an autistic person's viewpoint. Several of us here have found it very helpful, myself included:

    The Autistic Survival Guide to Therapy

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