Newly diagnosed adult

Hello everyone, 

I’ve just recently been diagnosed with autism as a 35 year old female. I’ve always suffered with poor mental health, mainly depression and anxiety, and decided to seek out a diagnosis so I could explain to people why I sometimes find things difficult. However, since my diagnosis which was on Tuesday, I’ve just felt so alone. I was hoping to reach out to this online community to speak to others who might be in the same situation. 

Anyway, thank you for taking the time to read this post. 

Arlia

P.S. I love Pokémon 

Parents
  • Hi Arlia, and welcome to the community!

    During the period following a diagnosis, it can be common for us - especially as late-diagnosed adults - to experience a lot of emotional dysregulation. Besides feeling relief about getting our diagnosis, this can also include working through a phase where we experience (backward-focused) anger, frustration, grieving and more. So please don't worry if you find this happening - it's normal! 

    The NAS has a great set of articles focused on "after diagnosis", including one covering how you might feel during the subsequent days / weeks / months. You might find them of interest and/or helpful:

    NAS - How you might feel after a diagnosis

    NAS - Other advice covering post-diagnosis including:

    • Talking about and disclosing your autism diagnosis
    • Emotional support for family members after a diagnosis
    • Formal support following an autism diagnosis
    • What can I do if formal support is not offered or is not enough

    In terms of what to do next, my advice at this point (ie soon after your diagnosis) would be to try and give yourself some time and breathing space to process and absorb everything that you've been through, and let your feelings settle down.

    For me, as for many others here, my diagnosis turned out to be much more of the start of a new journey, rather than a conclusion full of ready-made solutions for my various difficulties.  

    Therapy is often recommended after a diagnosis as a follow up action for your GP to arrange. You might find it helpful to borrow or buy this book, which includes discussion of various types of therapy and counselling, together with advice on choosing the right therapist or counsellor - all from an autistic person's viewpoint. Several of us here have found it very helpful, myself included:

    The Autistic Survival Guide to Therapy

    I've also found being a part of this community helpful; hopefully, you will too. Welcome again! :)

Reply
  • Hi Arlia, and welcome to the community!

    During the period following a diagnosis, it can be common for us - especially as late-diagnosed adults - to experience a lot of emotional dysregulation. Besides feeling relief about getting our diagnosis, this can also include working through a phase where we experience (backward-focused) anger, frustration, grieving and more. So please don't worry if you find this happening - it's normal! 

    The NAS has a great set of articles focused on "after diagnosis", including one covering how you might feel during the subsequent days / weeks / months. You might find them of interest and/or helpful:

    NAS - How you might feel after a diagnosis

    NAS - Other advice covering post-diagnosis including:

    • Talking about and disclosing your autism diagnosis
    • Emotional support for family members after a diagnosis
    • Formal support following an autism diagnosis
    • What can I do if formal support is not offered or is not enough

    In terms of what to do next, my advice at this point (ie soon after your diagnosis) would be to try and give yourself some time and breathing space to process and absorb everything that you've been through, and let your feelings settle down.

    For me, as for many others here, my diagnosis turned out to be much more of the start of a new journey, rather than a conclusion full of ready-made solutions for my various difficulties.  

    Therapy is often recommended after a diagnosis as a follow up action for your GP to arrange. You might find it helpful to borrow or buy this book, which includes discussion of various types of therapy and counselling, together with advice on choosing the right therapist or counsellor - all from an autistic person's viewpoint. Several of us here have found it very helpful, myself included:

    The Autistic Survival Guide to Therapy

    I've also found being a part of this community helpful; hopefully, you will too. Welcome again! :)

Children
No Data