Hello

Hi, I am a parent of a 15 year old boy, who has recently been diagnosed with aspergers, he went through school fairly normally other than problems with english, ie spellings, writing, he had lots of friends although shy with adults, suddenly outta the blue he refussed to go to school two years ago and has refused to leave the house ever since except for the occassional walk with dog in the dark, was wondering if anyone else has simllar experience and any advice how to deal with x

Parents
  • Hi my son was diagnosed at 16 after 2 years of him refusing to go to school and when i coud get him there he either left and walked over 3 miles home or hid in the toilets ( something I have only just found out). He became very depressed and told me he didnt want to live anymore. This was a devastating period for us all as I now know he felt he was the only person in the world like this, and felt isolated and totally misunderstood. He was referred to Camhs who diagnosed Aspergers and cliniccal depression . We have tried counselling and medication but I can honestly say the only thing that has helped is the community of his friends online that understand him and the fact that his family understand him .  He nows goes out at night with the dog and 2 months ago he organised and meticulisly planned a trip to London to meet with online friends . This was to my amazement that he bought his tickets online , planned his route so he didnt have to approach anyone for direction , and negotiated the crowds by wearing earphones and making sure he blocked poeple out by remaining "focused". After the trip he said it was the best day of his life but continued to live in his bedroom.  He will spur himself onto do things when the motivation is great enough and now that is something we are working on. Its is hard trying to find that incentive but hoping the more there is slowly but surely he will have the confidence to go out for small reasons as well as large. My friends and family find this contradiction in his behavouir hard to deal with and am trying to put his point of view across . He is now planning 2 more trips to see these friends so there is hope. It is a slow process and my son still wont answer the door or phone but he did used to have panic attacks . The school were useless and I now wish I had gone along with their monthly meeting which were a tick box exercise to keep me out of court . Your son is entitled to hospital at home which is a great service but They were so slow in referring my son he only had 1 session as it costs the school money and they were good at delaying things until he wasnt their resposability anymore. I dont know if that helps good luck

Reply
  • Hi my son was diagnosed at 16 after 2 years of him refusing to go to school and when i coud get him there he either left and walked over 3 miles home or hid in the toilets ( something I have only just found out). He became very depressed and told me he didnt want to live anymore. This was a devastating period for us all as I now know he felt he was the only person in the world like this, and felt isolated and totally misunderstood. He was referred to Camhs who diagnosed Aspergers and cliniccal depression . We have tried counselling and medication but I can honestly say the only thing that has helped is the community of his friends online that understand him and the fact that his family understand him .  He nows goes out at night with the dog and 2 months ago he organised and meticulisly planned a trip to London to meet with online friends . This was to my amazement that he bought his tickets online , planned his route so he didnt have to approach anyone for direction , and negotiated the crowds by wearing earphones and making sure he blocked poeple out by remaining "focused". After the trip he said it was the best day of his life but continued to live in his bedroom.  He will spur himself onto do things when the motivation is great enough and now that is something we are working on. Its is hard trying to find that incentive but hoping the more there is slowly but surely he will have the confidence to go out for small reasons as well as large. My friends and family find this contradiction in his behavouir hard to deal with and am trying to put his point of view across . He is now planning 2 more trips to see these friends so there is hope. It is a slow process and my son still wont answer the door or phone but he did used to have panic attacks . The school were useless and I now wish I had gone along with their monthly meeting which were a tick box exercise to keep me out of court . Your son is entitled to hospital at home which is a great service but They were so slow in referring my son he only had 1 session as it costs the school money and they were good at delaying things until he wasnt their resposability anymore. I dont know if that helps good luck

Children
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