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bernie1810

Hi, I'm new on here, only just been diagnosed after years of being reproached. for not being able to "move on" and counless misdiagnoses added to my name. I now have  hundreds of questions. One that bothers me a lot is why I have such difficulty using people's names. I can refer to someone by name but I just cannot use their name directly to them. If I want to speak to my partner, I have to go up to him and speak to him; I cannot call him by name. However I don't have this problem with my 4 year old twins. Does anyone else have this problem?

Parents

  • Absolutely, and it's an issue that hadn't occurred to me until you raised it.  I think you are absolutely right, and they say us on the spectrum need things repeated to take them on board, well I don't think we are the only ones! Foot in Mouth

    The thing is, diagnostic criteria, I guess, have to be a summary otherwise they could go on forever about the variety of things we have trouble with.  However, I do think that something could be incorporated into the diagnostic guidelines.  Although, I do question how many clinicians read or absorb those...

    I think clinicians get lazy, they don't keep up to date on latest developments and research.  So they assume that in their Godliness their experience tells them all they need to know.  This means, that without some humility and attempt to always stay ahead of the game, they can make mistakes.

    I understand that perhaps ethically, they cannot take everything the subject of the assessment tells them as fact, and they likely believe that if the individual has autism they will never be able to give an accurate portrayal of themselves.  But this is an insult and I personally take it as an affront.  We often have meticulous memories, are very factual and high attention to detail.  So other than potential issues with alexithymia, there is no reason an individual with high-functioning autism should be doubted in their portrayal of their experiences and difficulties.

    Therefore, with clinicians relying on a short list of diagnostic criteria which do not enlarge (as per your point about day-to-day experiences), there will never be a true/full picture of an ASD individual in the clinical process.  Perhaps it's too "medicalised" I don't know.

    Roll on diagnostic brain scans.

Reply

  • Absolutely, and it's an issue that hadn't occurred to me until you raised it.  I think you are absolutely right, and they say us on the spectrum need things repeated to take them on board, well I don't think we are the only ones! Foot in Mouth

    The thing is, diagnostic criteria, I guess, have to be a summary otherwise they could go on forever about the variety of things we have trouble with.  However, I do think that something could be incorporated into the diagnostic guidelines.  Although, I do question how many clinicians read or absorb those...

    I think clinicians get lazy, they don't keep up to date on latest developments and research.  So they assume that in their Godliness their experience tells them all they need to know.  This means, that without some humility and attempt to always stay ahead of the game, they can make mistakes.

    I understand that perhaps ethically, they cannot take everything the subject of the assessment tells them as fact, and they likely believe that if the individual has autism they will never be able to give an accurate portrayal of themselves.  But this is an insult and I personally take it as an affront.  We often have meticulous memories, are very factual and high attention to detail.  So other than potential issues with alexithymia, there is no reason an individual with high-functioning autism should be doubted in their portrayal of their experiences and difficulties.

    Therefore, with clinicians relying on a short list of diagnostic criteria which do not enlarge (as per your point about day-to-day experiences), there will never be a true/full picture of an ASD individual in the clinical process.  Perhaps it's too "medicalised" I don't know.

    Roll on diagnostic brain scans.

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