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Hi I am new. Recently diagnosed son

nursecharlee

Hi my son was diagnosed with autistic spectrum disorder in June this year. He is 6 and still awaiting an assessment by the educational psychologist which he has in a couple of weeks. School have been fab but he ideally needs one to one support. His main problem is lack of bowel control which he has never fully achieved. One of the main reasons I have joined this forum is that my hubby struggled with our sons diagnosis and 5 months on we arent really any further on. He is still struggling, finding it difficult to have patience with him. I have suggested he join an online forum as he is unable to come to any local support meetings due to his shiftwork. Is there anything else I can suggest to him? I have tried reading books but he isnt interested! I would be very grateful for any advice as we are struggling as a family. Many thanks

Parents

  • I know this isn't an answer to your question but my brother has recently been diagnosed with ASD at the very late age of 13 and my step-dad is exactly the same. He wasn't involved much in the diagnosis process and now still believes it is just bad behaviour. I can see that it is putting a strain on their relationship as he isn't supporting my mum and she really needs it as she is having a difficult time with the SENCO at our school. I try my best to be there but I just wish my step-dad would appreciate that it isn't easy for her and he should be more sensitive. Like I said I know this doesn't answer you question but hopefully the fact that this problem happens a lot and you aren't on your own!

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  • I know this isn't an answer to your question but my brother has recently been diagnosed with ASD at the very late age of 13 and my step-dad is exactly the same. He wasn't involved much in the diagnosis process and now still believes it is just bad behaviour. I can see that it is putting a strain on their relationship as he isn't supporting my mum and she really needs it as she is having a difficult time with the SENCO at our school. I try my best to be there but I just wish my step-dad would appreciate that it isn't easy for her and he should be more sensitive. Like I said I know this doesn't answer you question but hopefully the fact that this problem happens a lot and you aren't on your own!

Children
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