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Newly diagnosed, feeling like I have arrived on a new alien planet ...

Louise
over 1 year ago

Hi there, I am new here. I just received my diagnosis last week. 

I am feeling like I have arrived on a new alien planet ... Alien Honestly, I am struggling. 

I feel like I am feeling every possible emotion in response to my diagnosis: relief, understanding (but at the same time confusion), frustration (how did no one spot this before?), isolation.... You name it! It's a rollercoaster. 

I was wondering if anyone had any advice for me (and other who are newly diagnosed) - any tips, ideas for connecting to others on the spectrum, book recommendations, online support groups.... 

Thank you Heart️

Parents
  • over 1 year ago

    Six weeks ago and for the very first time in my life of struggles, mostly anxiety and low mood, Autism was raised.

    I had been referred having been on seasonal medication for SAD for a long time and the GP believing I was misdiagnosed. I went into the reviews for ADHD, SAD, other.... and at the end they said they'd ruled out what they could diagnose and had I considered Autism.

    For six weeks I have read testimonies, accounts and traits for typicals and am now in a similar situation to where you are.

    It depends on my mindset at the time so this list may differ in other posts but the big things that have me experiencing your list of emotions are in relation to:

    How I cant join a flowing conversation but somehow manage to stop all conversation with one comment I thought was relevant.

    House parties and social gathers, even with friends, raise my anxiety and confusion and often have me sat on my own puzzled why I cant hold a conversation like others.

    Why I observed/ heard things that nobody else seemed to so stopped raising but then later pulled up for not raising.

    I am not great on keeping contact going, but I offer to join your path as it could be the same path as mine. Many people are helpful here and I am thankful for that but if they are like me, recalling a position I was in the past can be rose tinted glasses, apologies to all if I am catching everyone under one banner on limited experiences.

    I would emphasise that I am not currently diagnosed at this time.

Reply
  • over 1 year ago

    Six weeks ago and for the very first time in my life of struggles, mostly anxiety and low mood, Autism was raised.

    I had been referred having been on seasonal medication for SAD for a long time and the GP believing I was misdiagnosed. I went into the reviews for ADHD, SAD, other.... and at the end they said they'd ruled out what they could diagnose and had I considered Autism.

    For six weeks I have read testimonies, accounts and traits for typicals and am now in a similar situation to where you are.

    It depends on my mindset at the time so this list may differ in other posts but the big things that have me experiencing your list of emotions are in relation to:

    How I cant join a flowing conversation but somehow manage to stop all conversation with one comment I thought was relevant.

    House parties and social gathers, even with friends, raise my anxiety and confusion and often have me sat on my own puzzled why I cant hold a conversation like others.

    Why I observed/ heard things that nobody else seemed to so stopped raising but then later pulled up for not raising.

    I am not great on keeping contact going, but I offer to join your path as it could be the same path as mine. Many people are helpful here and I am thankful for that but if they are like me, recalling a position I was in the past can be rose tinted glasses, apologies to all if I am catching everyone under one banner on limited experiences.

    I would emphasise that I am not currently diagnosed at this time.

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