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newly diagnosed

mikwar

Good afternoon everyone. 

After almost 2 years of pushing and pushing with letters, phone calls and everything else....we have just had the diagnosis that our 3 year old son has autism. 

It isn't severe but it is obvsiously still a concern and a shock to the system. We're waiting to hear from the local Autism Outreach team with the next steps.

I was just wondering what sort of advice anybody can give us in the meantime of how to deal with it because we don't really know what to expect now going forward such as the best school, how to discipline, is he being naughty or is it condition, should we have groundrules, can we expect family who do a lot of our childcare to understand, should we give him more time in nursery than what he currently has.

Also, my main issue is when Olly is acting up in public- I feel like I need to explain to people what is wrong, do other parents feel like that or do I just keep quiet?

I know I should probably wait until the professionals have been in touch but who knows that long will take and my wife and I are understable upset and worried.

many thanks

Parents

  • Hi - welcome.  If you haven't already, have a good look around the site via the home page.  Also have a look at the posts.  You will learn a lot from both as the questions you raise are all discussed or signposted to on the site.  

    I've never explained to strangers why my son sometimes gets v upset.    Saying "he's autistic" doesn't mean much to the general population, altho most will have heard the word before.   Just concentrate on helping your son during that difficult time.  That's my opinion!

    Family etc.  This can sometimes be difficult because how autism affects the individual can be difficult to explain to neuro-typical people.  They hear what you're saying but often don't "get it".  Also people react in different ways to the news so be as prepared as you can be for that.

    Your son will appreciate an understandable routine so he knows what he's going to do each day in some detail.  You can do a pictorial timetable so he can look at the pictures, for example.  Some autistic people have sensory issues : noise, smells, textures, tastes etc.  Maybe you've already identified?  There are 1 or 2 noises my son finds painful.  Noises that you and I might just find a bit unpleasant.  There's a big difference.

    I can't cover all your very pertinent questions but others will be along to chip in soon + as I said before this site is a vg resource.

    Just 1 more thing.  There's a lot to learn.  You can't learn it all at once.  Bit by bit is best in understandig how it affects your little boy.  Also you can come back whenever you want to ask whatever you want.

Reply

  • Hi - welcome.  If you haven't already, have a good look around the site via the home page.  Also have a look at the posts.  You will learn a lot from both as the questions you raise are all discussed or signposted to on the site.  

    I've never explained to strangers why my son sometimes gets v upset.    Saying "he's autistic" doesn't mean much to the general population, altho most will have heard the word before.   Just concentrate on helping your son during that difficult time.  That's my opinion!

    Family etc.  This can sometimes be difficult because how autism affects the individual can be difficult to explain to neuro-typical people.  They hear what you're saying but often don't "get it".  Also people react in different ways to the news so be as prepared as you can be for that.

    Your son will appreciate an understandable routine so he knows what he's going to do each day in some detail.  You can do a pictorial timetable so he can look at the pictures, for example.  Some autistic people have sensory issues : noise, smells, textures, tastes etc.  Maybe you've already identified?  There are 1 or 2 noises my son finds painful.  Noises that you and I might just find a bit unpleasant.  There's a big difference.

    I can't cover all your very pertinent questions but others will be along to chip in soon + as I said before this site is a vg resource.

    Just 1 more thing.  There's a lot to learn.  You can't learn it all at once.  Bit by bit is best in understandig how it affects your little boy.  Also you can come back whenever you want to ask whatever you want.

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