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advice needed

betty boop

Hi I have just registered today, and already have found this forum helpful and reassuring that there are other people going through the same thing. My son is 13 (soon to be 14), he struggles at school, so much so that he has refused to go back this term. He broke down on the day he was due to go. He suffers with facial twitching which gets worse everytime you mention school. His last parents evening was a bit upsetting as all the teachers said he asks unnecessary questions, acts stupid and is always putting his hand up asking the same thing over and over again. So the teachers thought that he was being disruptive to the class and just handed out detentions left right and centre.

 

Anyway to cut a long story short, he is suffering big time, we are just waiting for dates for appointments etc. The school are crap and are not helping enough or quick enough. We want some work sent home so he can do it and not get too behind.

 

Can I please ask for any advice and how long it was before people got confirmed diagnoses. Sorry I have rambled on, but we are all finding this very hard and very upsetting as I am sure you all feel the same, that you just want to help them but you feel useless.

 

from a desperate mum

 

Parents

  • Thanks for taking the time out to reply. My sons doctor did refer him to CAMHS and I was spoken to over the phone by the Access and Assessment Team. This was because of the way the letter was worded by his dr. The dr had put in their ?behaviour problems ?autism ?depression.  Basically they said to me that is sounds very much that your son has got aspergers, and it needs to go to a paediatrician.

    Well we know this already!!!!!! We have an appointment in 2 weeks with a neurologist and this is because of his facial twitching. 

    It seems to me that CAMHS are a waste of time, as like you say they prolong the assessment and come back with a load of bull. I have been advised that it has gone past the point of camhs and that we need to wait till our appointment and go from there.

    In the meantime the school are still putting him down as unauthorised abscences even though they know everything. All they are worried are their stupid figures.

    Until I came on here, I never realised what a battle this was going to be.

     

Reply

  • Thanks for taking the time out to reply. My sons doctor did refer him to CAMHS and I was spoken to over the phone by the Access and Assessment Team. This was because of the way the letter was worded by his dr. The dr had put in their ?behaviour problems ?autism ?depression.  Basically they said to me that is sounds very much that your son has got aspergers, and it needs to go to a paediatrician.

    Well we know this already!!!!!! We have an appointment in 2 weeks with a neurologist and this is because of his facial twitching. 

    It seems to me that CAMHS are a waste of time, as like you say they prolong the assessment and come back with a load of bull. I have been advised that it has gone past the point of camhs and that we need to wait till our appointment and go from there.

    In the meantime the school are still putting him down as unauthorised abscences even though they know everything. All they are worried are their stupid figures.

    Until I came on here, I never realised what a battle this was going to be.

     

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