Hello everyone,
I am new to the site, my son is six and has had his diagnosis for nearly 3 years now. Most of the time I can't really share how I feel about this the vast majority of people I know have no experience other than mine and they are quite simplistic and I often feel like I have to underplay things or agree with their distorted view of our day to day life because they act like I am being overly dramatic or pessimistic. I have to give them a positive view so they can smile and say "well that's alright, he is improving isn't he? He is soooo much better than he was?" and head off on their own lives with a light heart. The vast majority of the time he is great and deals with the trials in his life much better than he did, I love him and I admire him he is wonderful. However life is taxing, it is hard, it is complicated and sometimes I need to speak to people who just nod and smile and don't insist that things are better than they are just so they can end the conversation feeling ok in themselves. So I am turning to all of you because I fugure you know how I feel and that I don't feel like this all the time but sometimes I do and you won't all come down on me like a ton of well meaning bricks! Hello!
