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Son just diagnosed and im feeling scared for him & for me

Fa233

Hi my 14 year old son has just been diagnosed ASD after a very long process and now im unsure where we go from here- I am looking into courses that I can attend to help him manage his emotions but he wont attend any meetings.

Any help from your own experiences would be invaluable. 

Thx

Parents

  • Small steps and guidance from a local source, it can be the social work, doctor, Autism centre, depending what resources are available in your area. One thing I would say,, you can not be nor should your son left out to dry, this is very common post-diagnosis. Spend years splashing about, get a diagnosis,, expect a rescue helicopter or lifeboat,, but you are left to drown. IT IS A VERY CRUEL SYSTEM. I suggest, find a life jacket organisation out there for your son. Good luck, hope you do okay.  There is a national organisation but for the life of me, I can't remember there name, it is lipservice name only anyway, they only get paid to talk not serve the autism community.

    PS forget about courses for him just now, start small ask him what he wants to happen or do. Slow progress is better long-term, so do not panic. The condition is genetic so relax, take a day at a time as you can panic and run about like I did for a year after diagnosis, I just exhausted myself. Now I do little goals every day and feel a lot better.

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  • Small steps and guidance from a local source, it can be the social work, doctor, Autism centre, depending what resources are available in your area. One thing I would say,, you can not be nor should your son left out to dry, this is very common post-diagnosis. Spend years splashing about, get a diagnosis,, expect a rescue helicopter or lifeboat,, but you are left to drown. IT IS A VERY CRUEL SYSTEM. I suggest, find a life jacket organisation out there for your son. Good luck, hope you do okay.  There is a national organisation but for the life of me, I can't remember there name, it is lipservice name only anyway, they only get paid to talk not serve the autism community.

    PS forget about courses for him just now, start small ask him what he wants to happen or do. Slow progress is better long-term, so do not panic. The condition is genetic so relax, take a day at a time as you can panic and run about like I did for a year after diagnosis, I just exhausted myself. Now I do little goals every day and feel a lot better.

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