Hi - Mum to newly diagnosed 6 year old

Hi there,

My son was diagnosed recently and I'm struggling to find the right resources to help me support him.

He's in a mainstream school and plan is to keep him there with an EHCP. He struggles with social situations unless he feels very comfortable with the people around him. Change and new situations are really overwhelming/upsetting and he is very sensory seeking. He also finds emotions tricky - he's either very affected by them or unable to relate.

Some of the resources we've been referred to just don't feel like his version of Autism. I'm wondering where you go to look for resources/info please

Thank you :) 

  • Hi and welcome! I have listed a few useful links below that might be of use to you:

    Individuals on the spectrum can often display behaviour that may be challenging. There will generally be a reason for this and it is important to try and understand the trigger for the behaviour when developing strategies. You may like to have a look at the following link for more information on behaviour and strategies: https://www.autism.org.uk/advice-and-guidance/topics/behaviour 

    The following page contains a lot of helpful information about education for a child with an autism: https://www.autism.org.uk/advice-and-guidance/topics/education This includes information regarding getting extra support for your child in their education setting. 

    You may be interested in contacting a local National Autistic Society branch. Our branches offer support to local autistic people and their families. If you interesting in checking if there is a local branch near to you, please follow the link below: https://www.autism.org.uk/what-we-do/local-branches 

    Our branches are volunteer-led, and as such every branch and group is different. Some are parent support groups, some provide support and information to autistic adults, while others have office premises and run their own a drop-in service. You will need to check with a branch directly for more information on whether they are able to provide a particular service that you are interested in. 

    Hope that helps!

    SarahMod

  • Hi. As I was reading this I remember my son finding Christmas at Primary difficult because there was so much change to normal routine. My suggestion at home would be to try to keep as much as possible to routine.

    You say there is not much to help for your son's type of autism. Are you able to explain more? For example does he find reading and understanding of instructions difficult or is he of a higher ability but mainly finds social and sensory difficult?