New aspergers parent

Hi All,

Just wanted to say Hi.  My daughter has just been diagnosed with Aspergers and I am really in information overload at the moment.  I am logging everything I learn so that hopefully I can create a resource for others to use in the furture...  Such an uncertain time...

Any advice on the best places to look for information appreciated.

Mike.

Parents
  • Hi mum36 - welcome to the site.  Lots of info on the posts + via the home pg.  About school :  there are a number of posts from parents who say their child lets out all their frustrations from the school day when they get home!  It may be that's what's happening with him, despite you trying your best, the provision he gets in school may not be suitable.   As he isn't diagnosed yet I suppose the extra support he shd be getting at school cd be lacking??  4 - 7 years for a diagnosis is terrible.  I could hardly believe what I was reading.  He cd be ready for secondary school before he is diagnosed + children with autism appear to have more difficulties coping with secondary.   Don't just accept that, keep on at them, see your mp, whatever it takes to get it speeded up.   If you haven't check out the home pg about diagnosis/schooling etc.  There's also the ipsea site which I think relates to educational issues.

     Does he have a day to day routine at home + is he treated consistently by yourself + your husband?  That can make a big difference.  A lot of people don't understand about autism.  They look at an autistic child + see a non-autistic child + react accordingly.  It can be difficult to explain to people, especially if they aren't willing to learn/understand, especially as you haven't got a diagnosis yet.  It makes things tougher for all concerned.  My son has a sensitivity to certain sounds.  I explain it to people by asking them to think about a sound they really can't stand + how they'd feel if that noise was magnified xxxxx times + they couldn't get away from it.  My son hasn't got a sensitivity to clothing/fabrics etc but if he had I'd say something similar but say to them to imagine if instead of itching or rubbing on your skin it felt like sandpaper rubbing away at you.  It's trying to get across how different it is, how much more intense sometimes or at other times the opposite.  

    Good luck with everything - you're doing really well despite being let down by the services which are supposed to be their to help you + your son.  Don't put up with it.

Reply
  • Hi mum36 - welcome to the site.  Lots of info on the posts + via the home pg.  About school :  there are a number of posts from parents who say their child lets out all their frustrations from the school day when they get home!  It may be that's what's happening with him, despite you trying your best, the provision he gets in school may not be suitable.   As he isn't diagnosed yet I suppose the extra support he shd be getting at school cd be lacking??  4 - 7 years for a diagnosis is terrible.  I could hardly believe what I was reading.  He cd be ready for secondary school before he is diagnosed + children with autism appear to have more difficulties coping with secondary.   Don't just accept that, keep on at them, see your mp, whatever it takes to get it speeded up.   If you haven't check out the home pg about diagnosis/schooling etc.  There's also the ipsea site which I think relates to educational issues.

     Does he have a day to day routine at home + is he treated consistently by yourself + your husband?  That can make a big difference.  A lot of people don't understand about autism.  They look at an autistic child + see a non-autistic child + react accordingly.  It can be difficult to explain to people, especially if they aren't willing to learn/understand, especially as you haven't got a diagnosis yet.  It makes things tougher for all concerned.  My son has a sensitivity to certain sounds.  I explain it to people by asking them to think about a sound they really can't stand + how they'd feel if that noise was magnified xxxxx times + they couldn't get away from it.  My son hasn't got a sensitivity to clothing/fabrics etc but if he had I'd say something similar but say to them to imagine if instead of itching or rubbing on your skin it felt like sandpaper rubbing away at you.  It's trying to get across how different it is, how much more intense sometimes or at other times the opposite.  

    Good luck with everything - you're doing really well despite being let down by the services which are supposed to be their to help you + your son.  Don't put up with it.

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