Hello, I am sister of autistic teenager

This is Yan. I come from China and now study in London.

My brother is 17 years old now. He was diagnosed with autism when he was 5. My parents got crazy after that. 

My mother has tried all the methods she could to cure my brother, including attending special education school, normal primary school and middle school, having Chinese medicine etc.

Meanwhile, my father accepts it and puts more attention on work to earn more money as a way to escape...

I know that the support system for Autism in the UK is much better than in China. So, I would like to learn more about supporting the Autism group and also the Autism family group in the forum. And then help improve China's autism support system.

Nice to meet you here.

Thanks a lot!

Parents
  • I think that you have taken a positive step, I think the biggest thing is not to generalise, no two Autistics experience the world the same as the other.

    What are your brother's interests?

    Maybe use that to get closer to him.

    Understand what triggers meltdowns or shutdowns and how you can prevent them, and importantly what can be done to work round them

  • Thanks for your reply. I have learned a lot.

    My brother loves music, the change in numbers and sports. We sent him to study piano and cucurbit flute. He does well in practising but does not put any emotion into his music. We understand that he already does a great job.

    The thing we worry about is his future. When our parents pass away, how could he live by himself? Do you have any understanding of this question?

  • how could he live by himself?

    of course he can, many of us live single, I do for years

    problem is getting a job if I lose it, so he might need help with that

    i wish my sisters were like you - supportive and accepting

  • I work in a supermarket at the moment as a store assistant. If I didn't agree it with management before I started a job it could be like in a previous supermarket loong shifts, even 10h on a till, I can't do that anymore. Luckily new place is more friendly, I get only 2h each of shift during opening hours so I do not have to deal with customers a lot, and I had only till training I don't get shifts on till. 

    Basically anything that includes dealing with customers is a no-go now

  • Yes! The job is a big problem. May I ask what kind of work you do?

Reply Children
  • I work in a supermarket at the moment as a store assistant. If I didn't agree it with management before I started a job it could be like in a previous supermarket loong shifts, even 10h on a till, I can't do that anymore. Luckily new place is more friendly, I get only 2h each of shift during opening hours so I do not have to deal with customers a lot, and I had only till training I don't get shifts on till. 

    Basically anything that includes dealing with customers is a no-go now